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Going To Loo Straight After Food But No D?

MinxyMandy

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MinxyMandy Apprentice
MinxyMandy
Posted

Hi all,

I am on day 6 of eating gluten again and look about 8 months pregnant and feel awful.

I ate bread at first but if Candida then yeast would agrevate it. Now eating multigrain porrige and ryitas for lunch and tum is still massive and I get these crampy period type pains. Ive also noticed I do have BM but they arent D they are just big!!

Becuase I havent got D I am getting paranoid that maybe this isnt celiac??

I also get facial swelling does any one get that at all??

I am in an awful situation I have just started working for the NHS and they have told me to make myself ill ready for biopsy and I am worried about my new job. I have tried to go in and my boss doesnt really understand I dont thik as she said dont worry we will get you better here you are why dont use try these suppot tights they may help?????????? :blink:

Been to docs this am as off work and said what am I supposed to do I couldnt go in and start moving sick people etc as I fel to ill.. He gave me a certificate to stay off work for two weeks but I am so worried...

take care peeps

gluten day number 6 and counting ..

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RiceGuy Collaborator
RiceGuy
Posted

Firstly, I think you already have a diagnosis - via the diet!

Second, not having D doesn't mean much if anything. Everyone has their own unique set of reactions, and many have C, D, or neither. Try not to look for an exact match to any one person. You'll likely share various symptoms with different people.

If you want to continue to eat gluten, suppose you just have a tiny bit? From what I've read, the antibodies will remain for several days, so as long as the immune system is on the offense, I would hope a small amount of gluten would "keep the charge going" as it were. I'm not an expert in this, but that's my understanding.

MinxyMandy Apprentice
MinxyMandy
Posted
  • Author
Firstly, I think you already have a diagnosis - via the diet!

Second, not having D doesn't mean much if anything. Everyone has their own unique set of reactions, and many have C, D, or neither. Try not to look for an exact match to any one person. You'll likely share various symptoms with different people.

If you want to continue to eat gluten, suppose you just have a tiny bit? From what I've read, the antibodies will remain for several days, so as long as the immune system is on the offense, I would hope a small amount of gluten would "keep the charge going" as it were. I'm not an expert in this, but that's my understanding.

Thanks rice guy...

I know you all prob think I am mad doing this but I am still doubting its celiac even whilst doing the gluten challenge as I was being treated for candida before I am aware I get different reactions with sugar & gluten!!!

Ive been cutting out sugar and yeast and when I do have them thats when i get major depression and really sick..however I did follow the anticandida diet for 7 months strictly and the bloat didnt go completley what so ever and she did say I must have a nother problem stopping it going ....

Mind you Ive only had a small bowel of wheat flakes this am bloating is massive got a really bad headache..but when I have lunch with a few ryvitas my tum gets so massive I feel like I am going to

explode.

Yeah I know what your saying about not eating much but I have been informed by the celiac society to eat 4 slices of bread (min) a day to damage the villi for 6 weeks. So, I dont want to go through all this and havent done enough damage seems silly to risk that aswell. Ive tried not eating anything gluten after lunch but still have the symtoms in the morning I suppose it continues longer than just the same day.

Have a nice day thanks for posting nice to feel people want to share this horrible mess we are all in.

Mand:)

gfp Enthusiast
gfp
Posted
I am in an awful situation I have just started working for the NHS and they have told me to make myself ill ready for biopsy
I think you should take legal advice... CAB for free? just to make sure you know your rights if this gets tough...

They might be doing you a favour or think they are or it could be a double edged sword... read on...to the end to prevent jumping to conclusions.

I'm pretty certain that they can't force you to eat gluten against your will, indeed worded the correct way it would amount to deliberatly poisioning someone. Bear this in mind...as you read on...

Celiac is a commercial business in the UK, the NHS pays way over the odds for gluten-free food for prescription, about 4-5 times the going rate in a supermarket for the same thing. Many NHS trusts are trying to crack down on the amount but not the cost???

Secondly CUK is a "charity" that shares office space, directors etc. with "The coeliac trading company" which is NOT a charity...

Don't take my word, you can do a search at companies house on the internet...

The directors are presumably paid as well for consultancy ...

CUK advises the NHS....

Next CUK only accepts biopsy proven coelaics... this flies in the face of current research...

Please take some time to read up.... these are real medical papers...

Open Original Shared Link

Also: Follow-Up to the Catassi Study -- Scandinavia

Colin, et al, published a follow-up study to the Catassi (Coeliac Disease in the Year 2000:Exploring the Iceberg - University of Ancona, Italy) in the Scandinavian Journal of Gastroenterology 28(7):595-8, 1993, which demonstrated that approximately one third of the patients from the Catassi Study who had raised antibodies but no villous atrophy, did have villous atrophy when tested two years later. These results raise the number of diagnosed celiacs from the Catassi, et al study to over 1 in 200.

Specifically this may be useful

Open Original Shared Link

Open Original Shared Link

"Neurologic manifestations of gluten sensitivity are a scientific fact, not a theological issue. Whilst the debate continues, we owe it to our patients to screen them effectively for gluten sensitivity with the simple widely available antigliadin antibody test so that we do not in the meantime deprive them of a harmless but potentially effective treatment in the form of a gluten-free diet."

In other words they could be damaging you, even giving you organ damage that is never repairable, neurological damage etc.

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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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