Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Test Are In

confused

Recommended Posts

confused Community Regular
confused
Posted

i also had the celiac panel done when i sent in for the enterolab test. I wanted to be sure on all counts. Well I just spoke to my doctor and i am positive for celiac. I guess I am one of the few that didnt need to have the DQ2 or DQ8 gene.

paula

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

So what are your genes? I don't have DQ 2 or 8, but I swear I have Celiac (just not willing to do a gluten challenge to prove it). I have at least one copy of DQ3 subtype 7 (my son has two copies of it, so one had to come from me).

Link to comment
Share on other sites
confused Community Regular
confused
  • Author
Posted
So what are your genes? I don't have DQ 2 or 8, but I swear I have Celiac (just not willing to do a gluten challenge to prove it). I have at least one copy of DQ3 subtype 7 (my son has two copies of it, so one had to come from me).

I am

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

paula

Link to comment
Share on other sites
lonewolf Collaborator
lonewolf
Posted

Thanks. That's very interesting. I've read that DQ3, sub. 7 is almost exactly like DQ8 - I wonder if that's the key. My double DQ3-7 son is very gluten intolerant and it affects his digestive system and his behavior. His tests came out negative, but I think there wasn't enough damage done to show positive, since he's been gluten lite for most of his life.

Link to comment
Share on other sites
JerryK Community Regular
JerryK
Posted
i also had the celiac panel done when i sent in for the enterolab test. I wanted to be sure on all counts. Well I just spoke to my doctor and i am positive for celiac. I guess I am one of the few that didnt need to have the DQ2 or DQ8 gene.

paula

Interesting. I took it as fact when I didn't have DQ2 or DQ8, that I didn't have the Celiac gene.

I don't want to know bad enough to go back on Gluten and get a biopsy...but I am certainly interested, being another DQ 3,1 Subtype 7....

Just goes to show you how much we don't know...j

Link to comment
Share on other sites
CMCM Rising Star
CMCM
Posted

Well, doctors have really just skimmed the surface of knowledge about celiac disease. While most identified celiacs have DQ2 or 8, not all do. There are other unknown factors at work. With identical twins, who would have the same DNA, there are cases where one twin has celiac disease and the other doesn't. So there are definitely other factors involved. And there have been documented, endoscopy proved celiacs who have neither of the genes. Given the fact that relatively few Americans have been diagnosed thus far (those diagnosed tend to be those with the worst symptoms...thus they seek help and thus they get a diagnosis). But remember the analogy of the iceberg....the diagnosed cases are the tip, and the undiagnosed are the mass under water. So the data on celiac disease is incomplete at this point.

Just remember: those without the celiac gene can be just as sick as those with the gene, and a gluten free diet can help all who react to gluten. If you do not have the officially recognized celiac genes, that does not mean being gluten-free won't help you.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,081
    • Most Online (within 30 mins)
      7,748
    Jesmar
    Newest Member
    Jesmar
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Yes and variations in their sources for natural and artificial flavors could be the culprit as well.  I might be on the more sensitive side, but I do fine with McDonald's fries and burgers if I take the bun off, and other foods that have certified gluten free ingredients and only cross contamination risk preventing the gluten-free certification. 
    • trents
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By trents · Posted

      Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest source at any given time. I take it you are a pretty sensitive celiac.
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      The regular cheddar and sour cream Ruffles have yeast extract, which is probably the source of gluten.  Pinpointing the exact cause of gluten exposure is always tricky, but I've come to learn my initial reaction to gluten compared to the ongoing symptoms that will occur days, weeks, and sometimes months later.  
    • plumbago
      Finding out I’m coeliac whilst pregnant

      By plumbago · Posted

      Yes, that's probably best. (Honestly, that is an extraordinarily high number, I've never seen anything like that. I repeated my blood tests (not taken while pregnant BTW); before giving up cake, pizza, and beer, I wanted to know for sure! You don't wanna mess around with anything while pregnant. Congratulations and best of luck!
    • trents
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By trents · Posted

      Here are the ingredients listed for the regular sour cream and cheddar Ruffles: Potatoes, Vegetable Oil (Canola, Corn, Soybean, and/or Sunflower Oil), Maltodextrin (Made from Corn), Salt, Whey, Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Onion Powder, Monosodium Glutamate, Natural and Artificial Flavors, Buttermilk, Sour Cream (Cultured Cream, Skim Milk), Lactose, Butter (Cream, Salt), Sodium Caseinate, Yeast Extract, Citric Acid, Skim Milk, Blue Cheese (Milk, Cheese Cultures, Salt, Enzymes), Lactic Acid, Garlic Powder, Artificial Color (Yellow 6, Yellow 5), Whey Protein Isolate, and Milk Protein Concentrate. CONTAINS MILK INGREDIENTS. Here are the ingredients listed for the baked ones: INGREDIENTS: DRIED POTATOES, CORN STARCH, CORN OIL, SUGAR, MALTODEXTRIN (MADE FROM CORN), SALT, SOY LECITHIN, DEXTROSE, WHEY, WHEY PROTEIN CONCENTRATE, ONION POWDER, CHEDDAR CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), MONOSODIUM GLUTAMATE, BLUE CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), CITRIC ACID, ARTIFICIAL COLOR (YELLOW 6 LAKE, YELLOW 5 LAKE, YELLOW 5, YELLOW 6), SKIM MILK, NATURAL AND ARTIFICIAL FLAVORS, GARLIC POWDER, LACTIC ACID, DISODIUM INOSINATE, AND DISODIUM GUANYLATE. CONTAINS MILK AND SOY INGREDIENTS   They look a lot the same except for the baked product contains soy. What do you suppose is the hidden source of gluten in the regular Ruffles that is not found in the baked ones? Could you be mistaken in attributing your reaction to the Ruffles? Could it have been from gluten in something else you ate around the same time or even a non-gluten tummy event?
×
×
  • Create New...