Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back From My Trip...


I3Daniel

Recommended Posts

I3Daniel Apprentice

Hello!

It's so nice to be back! Two thoughts were constantly running through my mind throughout my trip: Is Daniel doing ok/eating gluten/starving to death because there's no gluten-free food in the house and he can't figure out what to buy??? and What posts am I mising on the forum??? :)

I actually had a decent time, and Daniel did perfectly fine without me! He got the Kinnickinnick delivery while I was gone, so that worked out perfectly. And, he went to the grocery store and bought himself some gluten-free items. So, that's a relief! Also, while I was gone he got a script for a Celiac blood panel!!! (see my post from today in the Pre-Diagnosis forum) I talked to Daniel this morning, and he told me that he was bored while I was gone, so one day he picked up "Dangerous Grains" [which I just "happened" to leave lying around... ;) ] and he read most of it. I am soooo glad he did this. I really think if he does some of his own reading-up on this he will feel more of a sense of the seriousness of it all, and be able to identify more with others with this disease. He started talking about how over the weekend he was noticing how angry and irritable he was feeling because he just couldn't eat what he was hungry for. Then, he showed me a paragraph in the book that discusses the withdrawal symptoms one might experience when first going gluten-free, and he said he laughed when he read it because it described him perfectly (with the exception of shortness of breath). So, I'm glad he's taking more of an interest in learning more about the disease, and I'm glad (although I wish it weren't so) he is able to identify with some of the things in the research. It's nice to know it's not just all in my head, and hopefully we're on our way to a full recovery!

It's so nice that our families are starting to come around. What Daniel's brother did for him just makes me love and appreciate his family even more. And, I was surprised to hear my mom (the most skeptical, anti-doctors person ever) tell me that she was in a grocery store and saw a ton of books there on gluten-free! It's so nice to know that although they may not completely understand or agree with everything we're doing, they're at least on our side.

Being gone (even for such a short time) and coming home to Daniel really makes me see how much I love and appreciate him. I really want to make sure we do what's right for him, so he can be happy and healthy for the rest of his life.

If there's one thing I learned on my trip, it's NEVER TAKE DANIEL TO CHICAGO! :) It's a gluten metropolis!!!

Sami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VegasCeliacBuckeye Collaborator

Sami,

There are actually a ton of places I have eaten at in Chicago.

The restaurant group, "Let us Entertain You" has a number of restaurants around town and they brag about their customer service - I have to admit, they do a damn good job and I really enjoyed their Cafe Ba Reeba restaurant.

Also, as long as you pack some gluten free goodies/snacks, he should be fine. Otherwise, you will need to get a taxi to Wild Oats or Whole Foods (assuming you did not rent a car).

I also had good meals at Gibson's, Outback and PF chang's while I was there.

NoGluGirl Contributor
Hello!

It's so nice to be back! Two thoughts were constantly running through my mind throughout my trip: Is Daniel doing ok/eating gluten/starving to death because there's no gluten-free food in the house and he can't figure out what to buy??? and What posts am I mising on the forum??? :)

I actually had a decent time, and Daniel did perfectly fine without me! He got the Kinnickinnick delivery while I was gone, so that worked out perfectly. And, he went to the grocery store and bought himself some gluten-free items. So, that's a relief! Also, while I was gone he got a script for a Celiac blood panel!!! (see my post from today in the Pre-Diagnosis forum) I talked to Daniel this morning, and he told me that he was bored while I was gone, so one day he picked up "Dangerous Grains" [which I just "happened" to leave lying around... ;) ] and he read most of it. I am soooo glad he did this. I really think if he does some of his own reading-up on this he will feel more of a sense of the seriousness of it all, and be able to identify more with others with this disease. He started talking about how over the weekend he was noticing how angry and irritable he was feeling because he just couldn't eat what he was hungry for. Then, he showed me a paragraph in the book that discusses the withdrawal symptoms one might experience when first going gluten-free, and he said he laughed when he read it because it described him perfectly (with the exception of shortness of breath). So, I'm glad he's taking more of an interest in learning more about the disease, and I'm glad (although I wish it weren't so) he is able to identify with some of the things in the research. It's nice to know it's not just all in my head, and hopefully we're on our way to a full recovery!

It's so nice that our families are starting to come around. What Daniel's brother did for him just makes me love and appreciate his family even more. And, I was surprised to hear my mom (the most skeptical, anti-doctors person ever) tell me that she was in a grocery store and saw a ton of books there on gluten-free! It's so nice to know that although they may not completely understand or agree with everything we're doing, they're at least on our side.

Being gone (even for such a short time) and coming home to Daniel really makes me see how much I love and appreciate him. I really want to make sure we do what's right for him, so he can be happy and healthy for the rest of his life.

If there's one thing I learned on my trip, it's NEVER TAKE DANIEL TO CHICAGO! :) It's a gluten metropolis!!!

Sami

Dear Sami,

I am so glad things went smoothly! :) That was wonderful he got the Kinnickinnick delivery while you were gone! It is difficult not being able to eat things you miss! You crave all of this food you cannot have! It is hard to deal with! :(

Reading that book will do him a lot of good. It makes us feel better knowing we are not hurting ourselves anymore. Eating gluten was killing us. That can be difficult to accept, but when you begin feeling better, that goes out the window! I did not really ever go into denial, because of that.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,230
    • Most Online (within 30 mins)
      7,748

    CarolfromSanDiego
    Newest Member
    CarolfromSanDiego
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
    • Scott Adams
      While spices, lentils, beans and chickpeas are naturally gluten-free, the main concern with any brand is cross-contamination during processing and packaging. Since Suraj doesn't appear to certify their products as gluten-free or use dedicated gluten-free facilities, there is some risk of trace gluten exposure, especially with their corn flour which could be milled on shared equipment with gluten-containing grains. For absolute safety, I'd recommend looking for brands that are certified gluten-free by organizations like GFCO - good options include McCormick for spices, TruRoots or Bob's Red Mill for lentils and beans, and Anthony's for corn flour. That said, if you need to use Suraj products, be sure to carefully check labels for any wheat warnings, thoroughly rinse lentils and beans before cooking, and consider contacting the manufacturer directly to ask about their gluten testing protocols. Many in our community have found that investing in certified gluten-free brands gives them greater peace of mind and helps avoid accidental gluten exposure, especially for higher-risk items like flours.
    • Scott Adams
      Dapsone, commonly prescribed for dermatitis herpetiformis (the itchy gluten-related skin condition), comes with several potential side effects that patients should monitor. The most frequent issues include blood-related problems like hemolytic anemia (especially in those with G6PD deficiency, which is more common in certain ethnic groups) and methemoglobinemia that can cause fatigue, shortness of breath, or bluish skin. Many patients also experience headaches, nausea, dizziness, or skin sensitivity to sunlight. While these effects are often manageable, there are rare but serious risks including dapsone hypersensitivity syndrome (with fever, rash and organ inflammation), liver problems, or severe anemia that require immediate medical attention. That's why doctors typically monitor blood counts and liver enzymes regularly during treatment. A crucial tip: proton pump inhibitors like omeprazole can interfere with dapsone's effectiveness, so discuss all medications with your doctor. If you develop fever, unexplained fatigue, yellowing skin/eyes, or a spreading rash while on dapsone, stop taking it and contact your healthcare provider right away. For celiac patients specifically, remember that strict gluten-free eating may eventually reduce or eliminate the need for dapsone to control dermatitis herpetiformis symptoms over time.
×
×
  • Create New...