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Just an update,

I have just come back from the doctor and was very annoyed that the hospital are not doing as requested. I have been in for blood test for celiac disease and a biopsy in my stomach for helicobacter pylori. Everytime i go in the just run tests on other stuff even though i make sure before hand what they are testing for. Anyway, they now know that my duodenum has no folds. The doctor today says that it might still be celiac disease or even yet helicobacter pylori. He has now also thrown another thing into the pot, he says it could be gallstones that are making my gallbadder excreting too much bile. This could also result in the duodenum folds reducing. I am having a screen done for this.

Has anyone else heard of this before. I am really hoping that it is not celiac disease, but not sure i want to have my gallbladder removed. Even better id prefer helicobacter pylori.

Anyway, my doctor is personally pushing the hospital and hopefully i will be fixed soon.

Not being to premature but would like to thank everyone for their past help.

Thanks

Jay


Hope i dont become a nuisance but there are so many questions i need to ask

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Guest Chrisbee
Just an update,

I have just come back from the doctor and was very annoyed that the hospital are not doing as requested. I have been in for blood test for celiac disease and a biopsy in my stomach for helicobacter pylori. Everytime i go in the just run tests on other stuff even though i make sure before hand what they are testing for. Anyway, they now know that my duodenum has no folds. The doctor today says that it might still be celiac disease or even yet helicobacter pylori. He has now also thrown another thing into the pot, he says it could be gallstones that are making my gallbadder excreting too much bile. This could also result in the duodenum folds reducing. I am having a screen done for this.

Has anyone else heard of this before. I am really hoping that it is not celiac disease, but not sure i want to have my gallbladder removed. Even better id prefer helicobacter pylori.

Anyway, my doctor is personally pushing the hospital and hopefully i will be fixed soon.

Not being to premature but would like to thank everyone for their past help.

Thanks

Jay

Hi Jay,

I don't know about the other two issues, but celiac can definitely cause the lack of folds. Here is a link to Columbia University's Celiac program for more information.

http://www.celiacdiseasecenter.columbia.ed...6-Endoscopy.htm

I hope they figure out which problem it actually is so you can feel better soon.

Christi

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You don't want the pylori bacteria either, the antibiotics for that are strong. I don't know what would be the best choice however...it just stinks when you don't feel well.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Jay-

So the doctor was mad at the hospital? That is good....right?

Have you been doing the gluten-free thing? How are you feeling with that?

-jessica :rolleyes:


Jessica

Gluten Free since 12-31-2002!!

Kansas

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