Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Surgery Done


jennyj

Recommended Posts

jennyj Collaborator

I had my surgery July 18th. They ended up removing 18 inches of small intestine and two very large tumors. The tumors are benign but they are concerned because there are several other small tumors that they did not take out this time. They cleaned up the area around the two so they think they got the worst. It has been a very slow recovery. I am drinking Ensure until I can eat more. The most frustrating part was while in the hospital the food, not it's taste but because they did not know what gluten free was. I could only have small bites but they would send cookies, bread, fried chicken, gravy. My daughter stayed with me and went to the nurses station and raised a little ----. Thanks for the thoughts and prayers. I've really missed this site.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Welcome back, Jenny :)

I'm glad to hear you're recovering nicely--I hope that continues.

Hospitals have a lot to learn about Celiac patients--I had surgery earlier this year, and even the nurses agreed it was best for me to supply all of my own food.

Take care.

Lisa Mentor

Hey Jenny,

Glad to have you back with us again. You have been through the worst, so everything else is a down hill slide.

A speedy recovery!!! :)

darkangel Rookie
Hospitals have a lot to learn about Celiac patients--I had surgery earlier this year, and even the nurses agreed it was best for me to supply all of my own food.

I'm amazed hospital dietitians don't know anything about celiac disease. That's pretty sad.

confusedks Enthusiast

I can second that! They are terrible about celiac. I am glad you are doing better though. '

Kassandra

ravenwoodglass Mentor

Glad your back and hope you recover soon.

gfpaperdoll Rookie

Glad you are back & doing better after surgery.

Hospitals lease out the food operation to the lowest bidder. I would not eat any of it even if I was not gluten free. Most of it is awful & totally unhealthy.

I remember ... ;) when schools & hospitals had actual staff that cooked real food from the local supply of meat & veggies. Oh we used to love our lunch room ladies & their wonderful cooking. Of course each school was different depending on where you lived in the U.S. Now it seems everything is the same government issued cheapo trash food...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Mimiof2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      EDG 3 years ago fine, now it shows focal villous blunting,

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    3. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,073
    • Most Online (within 30 mins)
      10,442

    Liley
    Newest Member
    Liley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
×
×
  • Create New...