Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Surgery Done


jennyj

Recommended Posts

jennyj Collaborator

I had my surgery July 18th. They ended up removing 18 inches of small intestine and two very large tumors. The tumors are benign but they are concerned because there are several other small tumors that they did not take out this time. They cleaned up the area around the two so they think they got the worst. It has been a very slow recovery. I am drinking Ensure until I can eat more. The most frustrating part was while in the hospital the food, not it's taste but because they did not know what gluten free was. I could only have small bites but they would send cookies, bread, fried chicken, gravy. My daughter stayed with me and went to the nurses station and raised a little ----. Thanks for the thoughts and prayers. I've really missed this site.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Welcome back, Jenny :)

I'm glad to hear you're recovering nicely--I hope that continues.

Hospitals have a lot to learn about Celiac patients--I had surgery earlier this year, and even the nurses agreed it was best for me to supply all of my own food.

Take care.

Link to comment
Share on other sites
Lisa Mentor

Hey Jenny,

Glad to have you back with us again. You have been through the worst, so everything else is a down hill slide.

A speedy recovery!!! :)

Link to comment
Share on other sites
darkangel Rookie
Hospitals have a lot to learn about Celiac patients--I had surgery earlier this year, and even the nurses agreed it was best for me to supply all of my own food.

I'm amazed hospital dietitians don't know anything about celiac disease. That's pretty sad.

Link to comment
Share on other sites
confusedks Enthusiast

I can second that! They are terrible about celiac. I am glad you are doing better though. '

Kassandra

Link to comment
Share on other sites
ravenwoodglass Mentor

Glad your back and hope you recover soon.

Link to comment
Share on other sites
gfpaperdoll Rookie

Glad you are back & doing better after surgery.

Hospitals lease out the food operation to the lowest bidder. I would not eat any of it even if I was not gluten free. Most of it is awful & totally unhealthy.

I remember ... ;) when schools & hospitals had actual staff that cooked real food from the local supply of meat & veggies. Oh we used to love our lunch room ladies & their wonderful cooking. Of course each school was different depending on where you lived in the U.S. Now it seems everything is the same government issued cheapo trash food...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,033
    • Most Online (within 30 mins)
      7,748

    Rahma
    Newest Member
    Rahma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Bright blood in the stool would indicate bleeding down at the lower end in the colorectal area as opposed to the small bowel below the stomach where celiac manifests damage to the villous lining. Are these blood stools persistent? It's not unusual for this to happen once in a while to most anyone when a small surface vessel breaks, kind of like a nose bleed. As Scott Adams said, you must continue to consume regular amounts of gluten if the specialist will be doing additional testing for celiac disease, which could include an endoscopy with biopsy of the small bowel lining.
    • Bev in Milw
      Checkouts gluten-free recipes at twww.redstaryeast.com We tried a bread machine years ago and weren’t happy with results. Bread machines have pre-set rise & bake times.  Unfortunately, the program doesn’t adjust to slight differences when measuring, relative humidity or temperature of ingredients & in kitchens.  Lots of efforts for ONE odd- sized loaf that hard to cut into useable slices.  College-aged son found best use for bread machine was as heavy duty mixer that ‘kept dust in the box.’  He would pre-measure ingredients for 2-3 loaves & use machine mix up individual batches.      Since gluten-free bread needs  to rise only once, each recipe of dough went into a loaf pan. Pans sat counter to rise—time dependent of temp in kitchen. Then, baked in oven until he, not machine, decided it was done.     Took ~10 min extra up front to measure & mix additions but adds nothing to rise & bake times.     Loaves are great for slicing (Slice extra before freezing!). One mess to clean up, saves time & energy since you need to bake  as is half as often (If  you plan to bake lots more than bread, opt for KitchenAid/ heavy duty mixer instead.  Cover with dish towel to capture dust!)     Personally, I’m sure I had as a kid since I’ve never been a fan  of bread. .  Have been wrapping corn tortillas around things for 40+ years.  Can still get a dozen 12-pks of tortillas for same or less than price as 1 load of gluten-free bread. PLUS. the tortillas have more nutrients!         
    • CelestialScribe
      Welcome to the forum. You are lucky because in Korean food, many classic meals such as bibimbap without sauce, barbecue meats and some kinds of soups generally do not have gluten. But it is a good idea to confirm with the restaurant workers for safety reasons. Regarding certain locations, I enjoy going to places such as Plant in Seoul and Sprout in Busan. Moreover, using applications like HappyCow or TripAdvisor can assist you to discover additional choices in the regions you plan to visit. One big tip: it is good to know some important Korean sentences, for example 'I cannot eat gluten' (geulluteuneul meogeul su eopseoyo)  or 'Does this have gluten?' (igeoe neun geulluteuni deureo innayo?) because they can be very helpful. If you are considering getting a local guide, I'd suggest this one https://gowithguide.com/korea They were very helpful when I needed to find places with gluten-free food options because they provide tours tailored to your preferences. Good luck with your travels! 🍻
    • RMJ
      It is concerning.  Unfortunately a lot of doctors don’t know a lot about celiac disease, even some gastroenterologists.  Here is an article for you: Celiac disease and miscarriage I hope you have a successful pregnancy and a healthy baby!
    • Katiec123
      @RMJ   this is really concerning and my GP has said none of this to me! 
×
×
  • Create New...