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lisaemtp

How Long Gluten Free Before...

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I decided that the best option for me would be to just go gluten-free and see how I feel. I've been gluten-free for a week now, and i feel really good! I only had one problem this week - we went out to dinner with my boyfriend's family, and I had bad PMS and decided I really needed a bite of his brownie - and I felt miserable all night. Since then I've been very good, and I've had none of my previous symptoms.

My question is, how long should I be gluten-free before I "challenge" with gluten? Last week was rough, between eating out and PMS and I want to do this right so I get an accurate response. Is it normal to be feeling (mostly) better after only a week, or is it just a coincidence?

Another question - Enterolab isn't in my budget, but if I decide to do it later (after being gluten-free) will the tests still be accurate? Or is it like blood tests, where you have to be eating gluten? I would like a more "official" diagnosis than dietary response, but I'm not willing to keep eating gluten and making myself suffer for six weeks while I wait to get in to see the doctor.

Thanks!

Lisa

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Celiac.com Sponsor (A8):

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I'd wait at least two months before doing a gluten challenge, and then eating plenty of gluten (no going light on this one) for a week.

As for enterolab - they say that they can detect antibodies for up to a year of being on a gluten free diet, but I probably wouldn't wait that long.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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If you're going to challenge gluten (or any food) you need to be 100% off of it for at least two weeks. I'd say a month anyway. Then add it back it taking great care in noting any changes in your body, digestive, mood.....etc.

Enterolab says they can test for up to a year after being gluten free. I'd say it depends on if you had more damage to start out with. You don't really need to do enterolab if the challenge tells you your body doesn't like it. I do like the gene test myself though.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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It's been about a month and a half for me, and next weekend I'm going to start eating gluten. My bloodwork came back negative, so this is the true test for me. I have been feeling better, but I need to test it to make sure it is the lack of gluten and not something else in my diet or life that is making me feel better. The first couple of weeks were very up and down for me... feeling better was gradual. And I'm still not great yet, but better than I was.

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