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BemLmom3

Test Results Are In

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Well we went in to get Emily's test results this morning. The ped said all was normal, this included the blood screen for Celiac. He also tested liver, kidney's ect. I did not expect the celiac disease to be anything other than normal seeing how she was not eating much gluten at all when tested and the fact that I have read that the results are inaccurate for kids her age. The Dr did not mention any of that....I did tell him that she is on a strict gluten-free diet and the vomiting and D have stopped. He said "good than do not feed her gluten" DUH! She did lose 7 more ounces though in one week. Whats up with that? She has been gluten-free for 5 days and she is still losing? He wants me to take her to the gastrioenterologist, but commented that there was not much else to test for. I do not want to do a bunch more testing when I know for sure she has a gluten intolerance, from the elimination and then reintroducing diet. She is 3.10 yrs and 27lbs, 37 inches. I worry though that she is still losing weight.... I guess I will call and make the appt, maybe by the time she gets in she will have healed some and gained a pound and then I can just cancel it? I will NOT do gluten for them to run the tests again, I do not need a diagnosis to tell me what I already know and hurt my daughter more in the process!

Thanks

Sharon

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If she's still losing, there could be more of an underlying cause and it might be wise to meet with a GI. Other than that, while you wait to see the GI, keep up the gluten-free diet. You're right---you don't have to reintroduce gluten to try and get a positive test. If it's helping some of those symptoms then that is a GOOD thing. It also might take a few more weeks to really see her stabilize her weight a bit.

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