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New Here -couple Of Questions

Rocco C

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Rocco C Newbie
Rocco C
Posted

Hi Everyone,

I was diagnosed after birth and was put on a gluten free diet. In the latter years of grade school, my family doctor tld my mother I had likely grown out of it. I am now 32 and have been having some severe problems the last few years. I have heard that you can not grow out of Celiac disease and so, resumed the gluten free diet.

I must admit that I had never taken Celiac seriously. I had always assumed it was just a food allergy and had o serious short term or long term effects.

For the past four years, I have had kidney stones. Six months ago, I started to have pain in my lower left abdomen. The pain got worse and worse. I then started to get extremely bloated whenever I ate anything. In the past month I have lost 18 lbs. I also have itchiness (no hives), severe knee pain and mouth sores.

I have been to emergency and was released ... they said the pain was from diverticulosis. I was then admitted to the hospital a few days later and was in there for a week, until I could get in for an endoscopy/colon. I got back from the hospital last night and the doctor said there was no evidence of any ulceritus, crohnes or other stomach disorder. He said the pain in my abdomen could not be from celiac because celiac does not hurt. He said he took a few biopsies from my upper and lower areas and would get to me in a couple of weeks. So here are my questions.

1. Is it possible that a person can out grow their celiac disease?

2. Can a person have celiac disease and be overweight?

3. In some instances, can celiac disease cause severe abdominal pain, in the lower left area ... painful enough to require narcotic painkillers? I was prescribed endocet, ibuprofin, and morphine and none seem to really get rid of the pain.

4. Has anyone else experienced severe pain in any of the following areas:

-knees

-lower left abdomen

-pilodinal cist

5. Has anyone had frequent cases of kidney stones associated with celiac disease.

6. Is there any way to connect/test the numbness in my lower left leg to show that it is celiac disease related?

7. I have read in some parts, that inhaling gluten can cause a reaction. Is there any documented proof of this? I work around grain railway cars. Could inhaling this affect me?

Sorry for all the questions. I have been taking this really seriously now and realize that I am very lucky to not have any of the more serious complications after not following a strict diet.

Thank You All :)

Rocco

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kbtoyssni Contributor
kbtoyssni
Posted

In the latter years of grade school, my family doctor tld my mother I had likely grown out of it. I am now 32 and have been having some severe problems the last few years.

-This was a very common misconception that doctors used to have.

1. Is it possible that a person can out grow their celiac disease?

-No.

2. Can a person have celiac disease and be overweight?

-Yes. Some studies have shown 40% of celiacs are overweight.

3. In some instances, can celiac disease cause severe abdominal pain, in the lower left area ... painful enough to require narcotic painkillers? I was prescribed endocet, ibuprofin, and morphine and none seem to really get rid of the pain.

-Yes, I think so. I never experienced this, but I'm sure it can happen.

4. Has anyone else experienced severe pain in any of the following areas:

-knees

-lower left abdomen

-pilodinal cist

-Yes. I had chronic joint and muscle pain (including knee joints) and chronic fatigue.

5. Has anyone had frequent cases of kidney stones associated with celiac disease.

-I haven't, but I'm sure someone here has :)

6. Is there any way to connect/test the numbness in my lower left leg to show that it is celiac disease related?

-Hmmm, not sure if there's a way to test for it. If you go gluten-free and it goes away, is that enough proof for you? Try searching for numbness on this site - I know I've seen threads about this before.

7. I have read in some parts, that inhaling gluten can cause a reaction. Is there any documented proof of this? I work around grain railway cars. Could inhaling this affect me?

-Not sure if there's documented proof, but if you inhale it, it gets in your nose and drains down into your stomach, then you can get glutened. Many people who worked around flour in bakeries or pizza places didn't get better until they quit. Wearing a face mask may help.

Rocco C Newbie
Rocco C
Posted
  • Author

Wow,

Thanks for the time you took for that detailed response!

Really happy to have found this site.

kenlove Rising Star
kenlove
Posted

Its great you already got some good answers, Just wanted to say that for me inhaling flour, grain dust or anything with gluten gives me the abdomen pains. Can't even go into a kitchen until a day after something was breaded.

Good uck

ken

Wow,

Thanks for the time you took for that detailed response!

Really happy to have found this site.

Lisa Mentor
Lisa
Posted

#6 - Peripheral Neuropathy - Open Original Shared Link

Causes of PN are diabetes, excess alcohol and other autoimmune illness ( i.e Celiac Disease)

Archived

This topic is now archived and is closed to further replies.

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      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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