Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

anaclare

Stuck In A Rut

Rate this topic

Recommended Posts

Hi All

My husband got diagnosed about 6 months ago. He's 30, and his symptoms were pretty bad for the last year or so.

We've made the house gluten-free, and he's great about sticking to the diet.

But - he's developed a recurrance of symptoms recently - and seems really apathetic about taking care of them. He is frustrated and tired of being sick, but also tired of thinking about and talking about the disease - I don't blame him. It must be really hard. He even has given up dairy for now, since there seems to be an intolerance until people heal up some.

I'm at a loss as to the next step: how do I keep him motivated? He's sticking to the gluten-free diet, and we've been through the ingredients lists and calling companies for everything (soap, cosmetics - you name it). But - he won't go back and see a doctor (I even got him a list of Celiac friendly ones from this site - thanks!) to see if there is another allergy - or if he is just still healing.

Any advice? Do you know what motivated other celiacs?

Thanks for any help!

Anaclare

Share this post


Link to post
Share on other sites

It can get frustrating, and I've felt that way at times. I think we all do though.

Recently, I've been able to dream up new ways to make food interesting, and it does help a lot. Like when it hit me one day that it would be easy to make gluten-free pies, even after considering all the things I can't have. That includes sugar, dairy, eggs, and a few other things.

Don't ask me about doctors though - I learned not to trust the medical industry long ago, so I'm biased against them in the extreme. I know I'm the best qualified to say how I feel anyway :) This site has probably been the best resource for most of the things I've had to deal with, and I'm not the only one who'll say that.

Some baked things that are easy to do gluten-free include crackers, cookies, casseroles, pies, muffins, biscuits, and probably a bunch of stuff I'm forgetting ATM, or haven't yet thought to try.

I'm sure others will have some great responses for you.

Share this post


Link to post
Share on other sites

Thanks!

I really apprciate the advice. I made some new & exciting dishes (scallops, a new type of bread) and re-de-glutened the house (just in case).

And it's always nice to know we aren't the only ones going through this.

Thanks so much!

anaclare

Share this post


Link to post
Share on other sites

I think that one thing that happens about the 6 month stage is that you start adding in some gluten free replacement foods like bread and crackers & some of us cannot tolerate those things. I do not tolerate most foods that are processed & eat none of the mixes for things like bread etc.

I cannot tolerate tapioca flour, soy flour, bean flours and a lot of the other grains. & I have a problem with rice now, so I limit it to no more than a small amount once a week. Instead of most every day, like I was eating. I have finally settled on a few flours to keep in the freezer for when I want to bake cookies or something, which is not very often. I use sorghum flour, coconut flour, almond flour, corn flour, & corn meal. I use coconut milk as my replacement milk in cooking.

I get a complete glutening from eating the Diamond Thin Nut crackers, & no Quaker rice cakes for me. Brach's candy is also not gluten free although you will not see it on the ingredients.

also your hubby might be reacting to lectins, especially if he has upped his bean consumption. I recommend that he read "Eat Right for your Blood Type". Also white potatoes are a problem for a lot of us. try sweet potatoes instead. He might want to also read the "Paleo Diet" by Cordain.

the most important thing is that he start taking a B12 every day. It will help a lot with energy & mood. I take 5,000mcg a day.

going gluten free is a process and you will continuously learn about foods & what works for you. I have adjusted my diet, for the better, several times in the past 4 years. & I spent 10 years before that thinking I had a wheat allergy, before I knew about gluten. Unfortunately, I was all too familiar with food allergies.

Share this post


Link to post
Share on other sites

Apparently, whilst 20% of the population can tolerate carbohydrate, 80% can't.

Gluten intolerance may actually stem from an inability to process carbohydrates per se. Whilst gluten based carbohydrates may be the major antagonist, it is likely that all carbs will have a detrimental effect sooner or later. Sugar is also included in the carbohydrate group.

I have found carb intolerance to be my main problem. I know that the two times in my life when I went low carb I was a lot better, so have started to do that again. I have dropped dairy, virtually all carbs apart from a little occasional gluten-free and the small amount of natural carb from fruits and veg, and make sure I get plenty of protein and fats. The only sugar I have is a little in the occasional gluten-free and some fruits.

This not only helps with weight-loss, as the body will not burn fat whilst it is being fed carbohydrate as fuel. Carb is meant as an occasional short-term fuel burst, but if we eat it continuously the body has no need to use fat and actually ends up storing any fat we are eating adding to what it already has. Our society is absolutely dripping with carbohydrate. It is no wonder that obesity and diabetes are on the increase.

I know going low carb is hard but it does get easier. The longer we go without it the less we actually want to eat it.

Protein regulates the blood sugar, keeping it stable. It avoids the tiring constant peaks and troughs of hyper and hypoglycemia that many people often experience. It helps diabetics as it does not raise the blood sugar as much or as radically as carbs do and it, along with fat is much more filling and keeps the digestion satisfied for much longer.

I wonder whether your husband might find any benefit of trying this for a while? It means a whole new mindset and thinking outside the box. It means thinking more about eating savoury things rather than sweet, although fruit is fine - high carb fruits like bananas need to be limited but others can be eaten fairly freely.

If you can eat tolerate dairy, you can have unsweetened fruit with cream which is very satisfying as a sweet treat.

We are always urged to go low-fat, but it is not fat that is the problem it is carbohydrate. The only time you see a fat Eskimo is when he (or she!) eats a high-carb, high sugar western diet! Their diet consists of predominantly fish, meat and fat and they are extremely healthy with little or no incidence of any of the diseases of our carbohydrate-ridden society.

Share this post


Link to post
Share on other sites

Thanks AliB:great info! I have been thinking on the same lines. Do you know of a good book/resource that may help?

AnaClare:

ALOT of celiacs also have trouble with corn (as well as other grains). Your husband may want to try eliminating a few more for a bit to see if it helps. For me, corn, sugar, and dairy made a bid difference. Good luck!

A

Share this post


Link to post
Share on other sites

So - it turns out he has some further allergies / intolerences! Things we used frequently, like garlic and soy and coffee - and brewer's yeast (good bye gluten-free beer).

Luckily, we have an amazing doctor/naturopath, who suggested that he do an extended allergy work-up.

Now - finally! - he is getting much, much better very quickly. And now that he is feeling better, he has got some of his motivation back (i'm sure vice versa, too).

This forum is great - source of information and support!

Share this post


Link to post
Share on other sites

I had no clue where to start in this forum so I just picked here. lol My husband has been diagnoised for almost twenty years now, though we've only been married four. For the first 3 years of our marriage he wasn't on "the diet" he had been on it when he was first diagnoised but after a few years he was tired of it. He just didn't eat a lot of wheat products and if he went into a big flare up as he called it he would just eat rice for a couple of days and all would be better. He finally had a flare that he couldn't control and decided to go back on the diet. I cried when my first batch of gluten-free bread came out of the oven. I have cooked award winning breads, cookies, and pastries and here sat a door stop. I thought I was alone. I even recently started a blog so others could find out they aren't the only ones. It is a journey that is for sure. We've been battling a flu/pnomnia type thing in the house and this place has been a God send. I have been able to look up each med and find out if it is ok for him.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,807
    • Most Online
      4,125

    Newest Member
    MeresaI
    Joined
  • Forum Statistics

    • Total Topics
      112,067
    • Total Posts
      956,699
  • Who's Online (See full list)

  • Forum Discussions

    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation.  However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes it took me to get home --- I will NEVER forgot the misery and agony of that drive!  I could just barely keep the car under control, in fact.
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious.  I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH.  Yeah, admittedly I was rather stressed out for a couple of days two weeks  ago or so, but I am significantly settled down now, even while negotiating the nutritional maze of trying to manage two
Water?! That's… unreasonably inconvenient. Did it happen with sweat?
  • Blog Entries

  • ×
    ×
    • Create New...