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AliB

Does Dh Always Have A Rash?

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My daughter who is 29 has been getting little occasional rashes that are sometimes itchy but not always. At the moment she has a very itchy area on her back but there does not yet seem to be any rash. A few months ago she had rashes on both hips although they weren't particularly itchy.

I too have had odd itchy skin areas occasionally over the years - so itchy I have sometimes drawn blood with the scratching! I had a patch on my right hand just before my digestion collapsed in January (I had had IBS for years and finally had a very bad painful stomach for the last 6 months) that was itchy for weeks. There was one small spot in the area, that I thought was just where I had knocked my hand or something. Eventually I suddenly noticed there was a small pimply sandpapery rash that had spread out about 2 inches around the spot. The skin went very dry but after that it started to clear up and stopped itching. By then I had already started gluten-free and dairy free.

I am pretty confident my Mum was Celiac although she died before it could be diagnosed. My blood test came back negative and I was in too much pain to wait for a biopsy so I started gluten-free straight after the blood test. My daughter has had major depression and emotional problems and suffered with things like night terrors as a child and I am wondering whether she (or even we) may have silent Celiac.

I do not know much about DH. Any advice would be helpful.


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?

Probably not much of a response, but I've asked myself that since I went gluten-free. My only symptoms, I mean really... ONLY symptoms were itchy scalp and arms. That's it. No rash, even. Definitely years of drastic hair loss, but no rash on scalp or arms. Nooo GI stuff at all.

Since going gluten-free I have no itch whatsoever... I had to cut out all beauty products that contain gluten. If I touch shampoo to my head that has wheat protein or some such thing... I dig at my scalp for days.

I have anti gliadin anitbodies but negative for celiac via blood work... go figure. Also, severe Vitamin D deficiency. No other nutrient levels tested, but i can imagine... Who cares, I cut the gluten. Hair is coming back quickly. But now, I really react to glutening. Itchy arms, scalp, and now face and ears and hair shedding for a week. Oh, and i forget to mention pimples... they all cleared up when I went gluten-free.

I have a feeling there is something different for everybody. I haven't found anybody who has my experience, yet I feel we are all the same because our experiences are all so different.

Good luck on your search.

Tracy

Tracy


Antigliadin IgA 78 (Normal Range <10 Units)

Antitissue Transglutaminase IgA 46 Units (Normal Range <10 Units)

Fat Score <300 Units (Normal Range <300 Units)

Anti-casein! (cow's milk) IgA antibody 54 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0602

HLA-DQB1 Molecular analysis, Allele 2 0602

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Anti-ovalbumin (chicken egg) IgA antibody 8 Units (Normal Range <10 Units)

Anti-Saccharomyces cerevisiae (dietary yeast) IgA 10 Units (Normal Range <10 Units)

Anti-Soy IgA 17 Units (Normal Range <10 Units)

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Thanks Tracy - it's good to get some feedback and to hear another experience.

I don't think I am Celiac although very GI but I do wonder, in view of the fact that my Mum was Celiac, whether it can skip generations. That happens with diabetes sometimes apparently, and as diabetes and celiac seem to be linked then I would imagine it is possible. Although I may not have it, I may have passed on the gene to my children or grandchildren.

I don't think enough is really known about it yet for any conclusion to be drawn on that but it is still an interesting thought.


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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What you're describing sounds like eczema. My son had it for years and I finally asked for him to be allergy tested. I had read that it can be caused by allergies. He had both blood and skin testing. He reacted to all but one or two out of 40 and had big swollen blisters on several of the dots they put on his back. The allergist said that the fact that he wasn't going crazy and was just calmly standing there showed that he was so used to it. Poor kid. We're going to eliminated the foods sometime and see which one/s are causing the eczema. He had a mild reaction to wheat, soy and tree nuts. We were given some cream that works well to help with the itching but I'm very cautious and use it only sparingly and occasionally.

Here's some info about DH.

http://www.csaceliacs.org/dh_defined.php


Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11

Son: ADHD '06,

neg. CELIAC PANEL 5/07

ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08

ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08

Gluten-free-Feb. '09

other food allergies

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I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.

Funny, you know I hadn't thought about it but for years I have had an area on my back just inside my right shoulder-blade that would get extremely itchy. It would also feel slightly numb. It seems to have been better since I went gluten-free although I think I have had to get the back-scratcher out a couple times - maybe I was reacting to something I'd eaten!

That's interesting about celery. i have wondered if I have a problem with it - I have a couple of herbal bouillon powders that I use in cooking and have found that they leave me with a strange taste in my mouth and a cough - although they don't seem to have any wheat in them I do wonder if it might be the celery. Perhaps they use celery seed as part of the flavour.

Are you ok with fresh celery stalk? I'm not sure about nightshades. I don't usually eat potatoes or tomatos at the moment but I did have a potato fairly recently and I cooked with some tomato paste the other day - I wonder if that is when I had to get the scratcher out??! I will monitor that one! Thanks.


Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

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