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ashase

Why Is Everything Wrong?

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Hello -

I hope someone can help as I am at wits end. In the past several years I have had the following:

1. Gall bladder removed (pre-gluten free) all sorts of "sludge in there)

2. Total Hysterectomy due to severe endometriosis (Pre-diagnosis)

POST GLUTEN FREE

3. Peripheral neoropathy - Nerve pain

4. Extreme fatigue

5. Elevated RH Factor but negative ANA - (few years back)

6. Joint pain

7. Doubled liver enzymes, low anion Gap

8. Liver biopsy shows extra iron and inflammation/irritation - mild

9. Weight loss

10. General overall feeling horrible

11. Horrible constipation - could be due to pain relievers

12. Shingles - gone now

Anyone experience all of these things? I made an appointment at Beth Isreal. I am desperate to feel well again. Any insight is greatly appreciated. THank you

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Sorry you're feeling so bad. My dad had shingles a year ago and is still suffering the nerve pain, it's horrible.

Do you have any lab results you can post? i.e. thyroid, CBC, iron/ferritin, etc.? Also, have you eliminated any other foods like dairy or soy at all? And are you taking any vitamin supplements and what ones? Are you on hormones?

Liz

Hello -

I hope someone can help as I am at wits end. In the past several years I have had the following:

1. Gall bladder removed (pre-gluten free) all sorts of "sludge in there)

2. Total Hysterectomy due to severe endometriosis (Pre-diagnosis)

POST GLUTEN FREE

3. Peripheral neoropathy - Nerve pain

4. Extreme fatigue

5. Elevated RH Factor but negative ANA - (few years back)

6. Joint pain

7. Doubled liver enzymes, low anion Gap

8. Liver biopsy shows extra iron and inflammation/irritation - mild

9. Weight loss

10. General overall feeling horrible

11. Horrible constipation - could be due to pain relievers

12. Shingles - gone now

Anyone experience all of these things? I made an appointment at Beth Isreal. I am desperate to feel well again. Any insight is greatly appreciated. THank you


Liz

Positive enterolab results 11/07:

-antigliadin IgA: 56 (normal <10)

-antitissue tTG IgA: 39 (normal <10)

-anti-casein IgA: 34 (normal <10)

-HLA-DQ: 2,1 (2,6)

Positive blood test IgA and IgG 12/07

Gluten-free Casein-free since 12/07

mostly soy free since 12/07

Diagnosed with adrenal fatigue 08/07

Diagnosed hypothyroid 01/08

Still have mercury fillings, high mercury and lead

Multiple chemical sensitivities

9 year old daughter positive enterolab test for gluten, casein, soy and egg with HLA-DQ 3,1 (7,6)--mostly exhibits behavioral reactions to foods including food dyes, MSG, aspartame

Mother passed away 3 years ago of adenocarcinoma of unknown primary. Two years prior had diarrhea causing her to weigh 86 pounds...Mayo clinic told her to take pepto bismol. NO test for celiac, lifelong hx of ulcers, osteoporosis. I now know she had the celiac gene (my dad has DQ1) and was probably undiagnosed her whole life.

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