Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

susieg_1

Lyme Disease Featured On The Today Show

Recommended Posts

Having finally been diagnosed with Lyme disease after learning of the symptoms and accurate testing procedures on this forum, I was thrilled to see a short segment on the NBC Today show that may help raise awareness of this terrible disease. They mentioned an article in the June issue of Self magazine that describes one woman's struggle for an accurate diagnosis and treatment for her Lyme disease. Great to see some national coverage on this topic!!

The video can be seen on the Today show website or the ivillage website.


Self dx celiac disease

Gluten free since July 2007

Clinical dx celiac disease November 2007

Self-dx Lyme disease May 2008

Lyme confirmed positive Western Blot May 2008

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Having finally been diagnosed with Lyme disease after learning of the symptoms and accurate testing procedures on this forum, I was thrilled to see a short segment on the NBC Today show that may help raise awareness of this terrible disease. They mentioned an article in the June issue of Self magazine that describes one woman's struggle for an accurate diagnosis and treatment for her Lyme disease. Great to see some national coverage on this topic

The video can be seen on the Today show website or the ivillage website.

I saw it too and thought of a couple of people posting here.I am glad the lady finally got the correct dx.It is crazy living with so many problems and not knowing why.....reminds me of myself....just not as long as that poor lady.


Kay

Gluten free since 4/11/08

Positive dietary response

Blood test negative

Endoscopy negative biopsy

but found :" Villous blunting and atrophy" and

"Gastric mucosal abnormality characterized by erythema"

Doctor insisted I need to go gluten free for at least 4 months

Best thing I ever did!

Share this post


Link to post
Share on other sites

I heard about the segment but did not see it. I find it frustrating, however, that they are tagging stuff like "three weeks of antibiotics is enough" at the end of this type of segment. Keep in mind when you hear this kind of thing that the IDSA (infectious disease society of America) was just forced to rewrite their guidelines for treatment of Lyme Disease because of anti-trust violations. This three week period is from their old guidelines. The new ones won't be out until next year.

After three weeks I still couldn't walk without help. <_<

But it is good that word is getting out more.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

Share this post


Link to post
Share on other sites