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lookingforanswers17

Bladder/pelvic Pain With Celiacs?

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Word of warning.... this is a long post but I just needed to vent and hopefully get some advice. Thanks in advance for you're help. Still waiting on my celiacs bloodwork but I feel like I'm finally making progress on getting a diagnois. I have a question though about bladder pain. When all my GI symptoms began I also got bladder pain. My bladder often hurts especially after gluten containing foods, alcohol, or consuming artificial sweetners. I've seen several urologists but they just dismis my symptoms. My family doctor suggested I may have Interstitial cystis but the urologist never tested for it. I'm a 22 year old male so he thought it would be highly unlikely I had it. All the symptoms started with the other celiacs symptoms I have. Not only will my bladder hurt but my whole pelvis will hurt and it is really annoying. Anyone else had these symptoms with celiacs? Could I have celiacs and cystis or could celiacs alone cause the problems. I just ordered the product prelief? Anyone taken it? I've hurt it really helps with IC so I figure I have nothing to lose. I'm not giving up until I feel normal again. Even if I have to see a million doctors. I just believe all my symptoms to be related somehow because they all started at the same time. Back pain in the SI joint which won't heal even after months of PT and chiropractic visits/ Abdominal pain/ibs symptoms which I refuse to believe is simply IBS and all the urologial symptoms along with anxiety and depression that started at the same time. Sorry this is such a long post. I'm just frustrated and looking for answers. I have trouble getting the docs to take me serious because I don't look sick but I truly feel terrible everyday and I know its not all in my head. Something is wrong and I want/need to know what it is. Hopefully celiacs will be my answer. I don't wish to have anything but I want a name for what I am going through so that I can begin to heal. I'm so tired of being sick with know reason why.

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hi

I'm not sure this site will accept this link but it has helped me so much

Have you looked into cutting foods with a high oxalate content in them

here is the link

This site covers so many areas but the link is to the main file for areas of info.

good luck

http://health.groups.yahoo.com/group/Tryin...Oxalates/files/

Judy in Philly


Judy in Southern CA

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You need to find a Urologist that will take you seriously. Many doctors have forgotten that they work for us, not the other way around. You might need to remind them once or twice of that fact. I have done this when I have been referred to specialists. I treat the first meeting as an interview and make my expectations clear. Makes a few of the "medical gods" nervous though. Many of us have both Celiac disease and interstitial cystitis. You will need to be as diligent with your bladder as you are with being a Celiac. Pay attention to caffeine, acidic fruits, sodas, tomatoes,etc to see if these are causing your pain.


Positive biopsy, positive blood test in 2/2006

Muscle biopsy in thigh in 2004 to confirm metabolic myopathy (found denervated nerves)

Interstitial cystitis diagnosis 2004

Hysterectomy 2003

3 for c-sections, 2 laparoscopies to remove abdominal adhesions

Abnormal heart beat when tired or glutened

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I have had the same problem w/ my bladder. I used to take Prelief and it works! Avoid acidic foods and you will do much better. I don't know if Celiac and Interstitial Bladder have anything in common but I experience them both (gluten sensitivity). Good luck!

-AnemoneGirl

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Word of warning.... this is a long post but I just needed to vent and hopefully get some advice. Thanks in advance for you're help. Still waiting on my celiacs bloodwork but I feel like I'm finally making progress on getting a diagnois. I have a question though about bladder pain. When all my GI symptoms began I also got bladder pain. My bladder often hurts especially after gluten containing foods, alcohol, or consuming artificial sweetners. I've seen several urologists but they just dismis my symptoms. My family doctor suggested I may have Interstitial cystis but the urologist never tested for it. I'm a 22 year old male so he thought it would be highly unlikely I had it. All the symptoms started with the other celiacs symptoms I have. Not only will my bladder hurt but my whole pelvis will hurt and it is really annoying. Anyone else had these symptoms with celiacs? Could I have celiacs and cystis or could celiacs alone cause the problems. I just ordered the product prelief? Anyone taken it? I've hurt it really helps with IC so I figure I have nothing to lose. I'm not giving up until I feel normal again. Even if I have to see a million doctors. I just believe all my symptoms to be related somehow because they all started at the same time. Back pain in the SI joint which won't heal even after months of PT and chiropractic visits/ Abdominal pain/ibs symptoms which I refuse to believe is simply IBS and all the urologial symptoms along with anxiety and depression that started at the same time. Sorry this is such a long post. I'm just frustrated and looking for answers. I have trouble getting the docs to take me serious because I don't look sick but I truly feel terrible everyday and I know its not all in my head. Something is wrong and I want/need to know what it is. Hopefully celiacs will be my answer. I don't wish to have anything but I want a name for what I am going through so that I can begin to heal. I'm so tired of being sick with know reason why.

Yes! I too have had the bladder irritation. Years before my celic diagnosis I suffered badly and if I ate the wrong foods including herbs my bladder would spasm and the pain and irritation was uncomfortable. I believe now in retrospect that gluten has something to do with it and so does the other chemical and food sensitivities that I have. I drink 100% Organic cranberry juice 4-5 times a week or juice my own cranberries. I do water it down. It is a bit tart, however I mix it with water till I can tolerate it. Now it's easy to drink more. I haven't had any bladder issues, knock on wood, in several months now. My mom suffers regularly with bladder issues and swears by Azo Standard - she is just now being diagnosed celiac after 57 years! So, I'm not sure if the Azo Standard that you can by at your pharmacy is gluten free though. I'm not a pill taker so I could never get the medicine from my hand to my mouth! LOL

Wish you all the best.


Diagnosed @ 18 with rheumatoid arthritis

Age 29, diagnosed, endometriosis/adenomyosis, Stage IV, hysterectomy followed 12/2001

React to: Gluten, Soy, MSG, Fish, Bananas, Dairy and Yeast

Multiple chemical sensitivities - ibuprofen and icy hot for the muscle pain is a no no!

Elim diet started 3/2006 due to symptoms - eliminated gluten & just about everything else!

Dramatic improvement

Blood Tests for celiac Negative 7/2007 (taken when off gluten)

Added gluten back to diet after negative blood tests in minimal amounts, symptoms began returning

Enterolab results 8/2008 positive for IGA & TTG

Genetic Testing

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0604

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)

Diagnosed 8/2008 with Celiac from elim diet, positive IGA, TTG tests, genetic results & family history

Some Symptoms: seizures, tingling in hands, feet, legs, facial numbness, muscle spasms, jerking muscles, convulsions, vision problems, speech impairments, memory loss, hair loss, urinary tract irritation, loss of balance & coordination, vertigo, severe constipation (weeks w/out BM), heartburn, heart arythmia, hypoglycemia, hyptension, fainting, dry mouth. gas, bloating, tooth defects, acne, weight gain, bruise easy, muscle & joint pain......and they said it was "all in my head"

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This thread is amazing me... I haven't been officially diagnosed but I think I have celiac. And I'm just realizing that my chronic cystitis I used to get might be related!?! That's crazy!

I used to have really bad, chronic cystitis (I'm talking at least 2 times a month!). Thank goodness that has gone away a long time ago but I just wanted to post here. I am really shocked to hear that the two things might be related!

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