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Celiac, Now Depression?


celiacsista

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celiacsista Newbie

I know someone posted he had depression and wondered if he had celiac. I know I have Celiac and now am wondering if I have depression. Any tips? I thought gluten free would make me feel better.

I recently went to the dr to have blood work done because I was so tired all the time. I have no energy or desire to do anything. He gave me a questionaire about depression. I kind of feel embarrassed to talk to anyone I know about it. Any advice would be much appreciated.


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ravenwoodglass Mentor

My first question to you would be - How long have you been gluten free? And have you had any accidental glutening during that time? For some of us withdrawl is a very real aspect of starting the gluten free diet. That could be what you are experiencing and it will lift. Also to try and improve you energy levels and also your mood you should take a sublingual gluten-free B12. That will help you a lot through the transition period and beyond.

ShayFL Enthusiast

Along with B12...Your Vitamin D levels might be low. You can get them checked or it is perfectly safe to take 1000 - 2000 IU daily and GET SOME SUNSHINE which naturally relieves depression. If you are able.....a little exercise can go a long way too. Just a stroll if it is all you can muster.

celiacsista Newbie
Along with B12...Your Vitamin D levels might be low. You can get them checked or it is perfectly safe to take 1000 - 2000 IU daily and GET SOME SUNSHINE which naturally relieves depression. If you are able.....a little exercise can go a long way too. Just a stroll if it is all you can muster.

THanks for the tips. I have recently been forcing myself to get some exercise. I think I will try the vitaminD and B12.

celiacsista Newbie
My first question to you would be - How long have you been gluten free? And have you had any accidental glutening during that time? For some of us withdrawl is a very real aspect of starting the gluten free diet. That could be what you are experiencing and it will lift. Also to try and improve you energy levels and also your mood you should take a sublingual gluten-free B12. That will help you a lot through the transition period and beyond.

I have been gluten free for 2 years but have had a couple of accidental glutenings along the way. I am definitely going to try the B12. Thanks for your reply. It's nice to know I'm not alone with all of this!

missy'smom Collaborator

Because of past history that started before celiac disease was triggered, I get depression from gluten as well as regular depression. I thought being gluten-free would cure me and seemed to but I went through a difficult situation not long ago and the depression came back. I am quite sure it was not gluten induced. They both feel similar but I know myself well so I know what caused it. It's good that you got the blood tests. I'm assuming they all came back ok? I thought for sure I must have anemia or something else because my energy levels were not up to par. It's good to be tested because there are some things we just can't figure out ourselves. Sometimes it can be depression but we have to be proactive and check out all the possibilites because it can be related to health problems as we know too well. I got tested too but only my potassium came back lower than normal. I realized that my diet had gotten off track when I was depressed and I was consuming almost no potassium containing foods on a daily basis. When I made a conscious effort to eat several servings a day, I felt better,then got retested a month later and my levels were up to normal. I did learn that one of the symptoms of low potassium levels is fatigue. I also made a committment to just walk around the neighborhood, just a small 15 min. route everyday because I don't exercise. It has made a difference too. I was so afraid to start because I thought it would just make me more fatigued. Good luck finding answers and hope you feel better.

Robynhood Newbie

B12 is the magic bullet for me!!! I took antidepressants and they did nothing, then found out my b12 levels were super low. A shot a month takes care of all of this. If I didnt have my b12 I would lie on the couch and feel sad.... get your b levels checked. and yes, taking a b12 supplement is a good idea too.... It is a water soluble vitamin so you will just pee out any excess... a whack on the head to your doctor for not checking this out first!

:) Robyn

I know someone posted he had depression and wondered if he had celiac. I know I have Celiac and now am wondering if I have depression. Any tips? I thought gluten free would make me feel better.

I recently went to the dr to have blood work done because I was so tired all the time. I have no energy or desire to do anything. He gave me a questionaire about depression. I kind of feel embarrassed to talk to anyone I know about it. Any advice would be much appreciated.


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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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