Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Thank You

mmmSmores

By mmmSmores
in Coping with Celiac Disease

Recommended Posts

mmmSmores Apprentice
mmmSmores
Posted

Thank you for the many replies...I find it very helpful. Its nice to hear responses from real people rather than just reading my Gluten Free Lifestyle for Dummies book...although it has been very helpful.

For a while I was having acid reflux, everyday, tums started not to work. And with that I also had a variety of Gastro problems, not to mention horrible bloating too. I went on Omeprazole and haven't had a lick of reflux since. Perhaps that was part of the celiac. After reading about the symptoms of celiac I found that I was having non-gastro problems, fuzzy brain, minor skin problems, possibly some dental problems too. I had a really low Vitamin D level and have been on prescription doses of that since i've been diagnosed.

Sorry if all of that is jumbled up...i have so many thoughts about this running through my head, its hard to get it all out in an orderly fashion.

By the way, how do you find out what gene you have? Also, i'll be throwing away my wooden spoons!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aliciatakescare Newbie
aliciatakescare
Posted

I agree that it is nice to have real people who actually do understand and can be supportive. I went out and bought all new cooking utensils for myself and have also gotten my own pots, pans, storage containers, etc. All of this has helped to lessen the stress related to living gluten free.

GlutenWrangler Contributor
GlutenWrangler
Posted

You can ask your doctor to run a gene test for you. If your doctor refuses, you can order a gene test through Enterolab. They send you a swab for the inside of your cheek, and then you send it back to them. It usually takes about 2-3 weeks to get the results back. I think it costs around $99.

-Brian

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    2. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If...
    3. Scott Adams
      0

      New Study Finds 1 in 10 Celiac Patients May Have Additional Autoimmune Disorders (+Video)

    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    5. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      6

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,049
    • Most Online (within 30 mins)
      10,442
    Chris farrugia
    Newest Member
    Chris farrugia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
×
×
  • Create New...