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Gluten-free Diet, New And Feeling Hopeless


livelifelarge24

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livelifelarge24 Enthusiast

I have recently been put on the gluten free diet [as well as dairy free] and I'm still trying to get the hang of it. I'm not eating perfectly but I've had a miserable time so far - lots of stomach cramping and even some diarrhea the last few days. I'm feeling so discouraged because these are they symptoms I was trying to get rid of in the first place!

What I'm wondering are if some of the ingredients in the gluten-free foods that I'm eating are going to cause some of this stomach discomfort? I've eaten a lot of the gluten free crackers, cookies, and breads to replace their counterparts that I love so much and probably haven't focused enough on actual meals. Has anyone had a similar experience when changing their diet over or am I alone here????


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mushroom Proficient
What I'm wondering are if some of the ingredients in the gluten-free foods that I'm eating are going to cause some of this stomach discomfort? I've eaten a lot of the gluten free crackers, cookies, and breads to replace their counterparts that I love so much and probably haven't focused enough on actual meals. Has anyone had a similar experience when changing their diet over or am I alone here????

Many of us discover other sensitivities after we discontinue gluten. For me it was the soy that so many processed foods seem to contain to make up for the lack of gluten--cookies, crackers, breads. It is best at first to avoid these products, I found out, and eat very simply with plain unprocessed foods to give yourself a chance to heal. Then you can add back in some substitute grains, but slowly, so that you know what you are reacting to, if you are. But initially there is no need to substitute for gluten--just concentrate on a pure diet of chicken, fish, veggies, fruits, meat, rice, nuts and seeds. If that doesn't help, cut out the nuts and seeds. It is all a process of seeing what works for you. Add things back in one at a time so you can follow your reactions. Keep a food diary so you can track what is happening. If something seems to affect you, cut it out.

Good luck and I hope you are feeling better soon. Let us know how you are doing.

cat3883 Explorer

Mushroom said it perfectly.

dilettantesteph Collaborator

I felt the same way. In the beginning you get more sensitive to gluten too, so when you mess up, you really pay. Sometimes it seems like it would be better to go back to a gluten containing diet. The hopelessness also comes from the effects of gluten. Stick it out and once you figure it all out, and you heal, things are so much better.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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