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Everything posted by dilettantesteph

  1. You have an extra challenge with the kids. It will get easier over time. I didn't do much initially but these days I go on trips even out of the country and attend social functions involving food. You just need to figure out ways to make it work.
  2. I was also tempted by my old favorites initially. After awhile that food lost it's appeal. You get new favoritie things to eat. Things get better.
  3. I am sorry that you had this problem. I hope that your daughter is feeling better. Can you please answer a question for me? Was it a colored plastic? My endodontist recently told me that it was colored materials that were most likely to contain gluten so they avoided those. This didn't make sense to me since gluten isn't colored. I had some terrible problems recently which coincided with the root canal procedure. Please notice I do not say that I know that it was caused by the procedure.
  4. This is what webMD says: http://www.webmd.com/digestive-disorders/blood-in-stool "It is important to have a doctor evaluate any bleeding in the stool." Try not to worry as you wait for your appointment. It is likely nothing serious.
  5. I'm sorry you got sick. It is really hard to tell what is causing a reaction, especially at first. Personally, I like removing as many possibilities as I can so that I can more easily know what the problem is. One thing that you could do is to put the melon in deep bowl and put the stretch tite over that so that it doesn't touch the melon. I hope that you feel better soon.
  6. I should have put this in my first post, but my mind wasn't working very well then. My experience with supplements was that my health improved significantly when I cut them all out. I was taking quite a few and likely, in my opinion, something was gluten contaminated. I am very sensitive so that my experience would not apply to the vast majority of celiacs. Since you having ongoing problems, you may not be in the vast majority of celiacs as well. I researched how to get nutrients from food. There were a few things that I couldn't get from my food, so I added those things back in supplement form one at a time so that I'd be able to tell if anything bothered me. Right now I'm taking iodine, a probiotic, and a digestive enzyme. The later is from a gluten-free certified facility. I still agree with Kareng that supplements are not necessarily the most likely issue and that you should look in other places too. I apologize for the bickering. Also, sorry about some spelling errors earlier. I don't seem to be able to edit anymore, or I'd fix them.
  7. If you like green tea, but not too bitter, you may like green tea with chamomile. The Twinnings brand used to be my favorite.
  8. I'm not sure about in Australia, but here in the U.S. you can often get journal articles from your local library. You need to special order them but they get you copies in a few days. You can also go to the local university library and get access there sometimes. I agree that it can be a challenge. Not only is it a challenge to read them and understand them, but it is a big challenge to gain access without high fees. It would be so nice if our medical professionals could be better at reading them for us, but I think that there is just so much information out there these days that it is hard to keep up, especially for a doctor that treats many conditions. I am so pleased when I go to discuss recent research with my doctor and find that she has already read it. She's a keeper.
  9. I am sorry that you are feeling sick again. It is tough when it seems like the only way to find out if something will make you sick is to have it make you sick. I hope that you recover quickly. I also hope that you make good progress at figuring out what is bothering you. I hope that keeping the food diary helps.
  10. Oh, good. Sorry I didn't notice. In case anyone is interested, there are eggs available from soy free chickens. Just soy free eggs online. I have no idea if it is really an issue.
  11. The OP has a soy reaction. I think that's why he posted in the "Other Food Intolerances" section.
  12. I got diagnosed with Sjogren's syndrome recently. The reason I went to the eye doctor was that I had blurred vision and I was afraid that I was losing my eyesight. She said that we tear up more with dry eyes and that was what caused the blurring. At that time I was suffering from a relatively long term accidental gluten ingestion period. Later, when I got my diet under control again, the symptoms went away. I hadn't started taking the prescribed medication yet because I was waiting to get over the glutening first. I don't like adding anything when I am glutened because then I might not notice if it causes problems. I ended up not taking it since the symptoms went away on their own. Since then I do notice them coming back again if I have a long accidental gluten ingestion period.
  13. I didn't edit that out to try to hide something. I edited it out to try to make my meaning more clear. Please don't make accusations.
  14. The comments from Irishheart make realize that I need to work harder to be more clear. I gave the references to those studies because I thought the OP might want to read them because they are relevant to her question to me asking if I cut grains from my diet to heal.
  15. That comments makes it look like I need to make myself more clear. I think that the doctor thought of supplements as the problem because of the study. I don't think that is necessarily the actual problem. I think that the advice that Kareng gave about looking for gluten elsewhere as well is a good idea.
  16. A study showing that grains can be contaminated: https://www.glutenfreewatchdog.org/blog/Naturally-Gluten-Free-Grains-and-Gluten-Contamination/6 A study showing celiacs continuing to experience symptoms when they were on a special diet: http://www.biomedcentral.com/1471-230X/13/40 They do allow rice. "All cereal grains aside from rice are prohibited."
  17. I think that the doctor assumed that it was the supplements because a study has come out recently about contamination of supplements: http://www.biomedcentral.com/1741-7015/11/222 I don't know if that means that the most likely source in your diet would be the supplements. It would a good idea to also look elsewhere as Kareng suggested. Also try to look for a pattern with what you eat and when you get your symptoms. A food/symptom journal can be helpful fo this. I hope that you feel better soon.
  18. A special diet was developed for celiacs with ongoing symptoms that you could discuss with your doctors. You can find it here: http://www.biomedcentral.com/1471-230X/13/40 It can apply to children and you can read the story of a 9 year old girl who went on this diet here: http://www.celiaccentral.org/kids/stories/celiac-girl-a-blog-by-9-year-old-alexis-c/meet-celiac-girl-alexis-c/ I wish that we could get an updated story. I hope that you child feels better soon.
  19. StephanieL, let me apologize to you again. I had my daughter read the thread and she explained how it sounded. You know how something that you have in your head can sound different when it is written down? I thought that the OP could approach the school better if she had a good understanding of the reasons for the policy. I know very well that some children with allergies need food from facilities where the allergen is not processed. That wasn't the evidence that I was wondering about. Kids sharing their food hadn't occurred to me as my children's schools have had a no sharing food policy for some time. I thought that this issue was airborne nut particles coming from food being processed in a shared facility and that sounded far fetched. I did not mean to question your child's need for food processed in allergen free facilities. I did not mean to diminish the possible danger to your child that could be caused by eating a small amount of allergen.
  20. Yes, I did do this. It was my personal experience that it helped me heal. Other things also helped. It helped me to keep a food/symptom journal so that I could track where my reactions came from and elmininate those things as well.
  21. I am very sorry if I caused you any pain. I honestly was looking for some evidence for food from a nut free facility being necessary for even being the presence of a child with a nut allergy. I guess I am little bothered by this stuff because my son's school won't allow latex balloons in the school at all due to a latex allergy. At the same time, they will not even provide a crumb free desk for him. It really doesn't make any sense.
  22. I would have to ask for evidence, but perhaps that should be done in a different thread.
  23. Exactly, and it is because of moderators response to thit that I have reread the board rules and I am very careful to provide evidence for what I say, or to state it as experience or opinion.
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