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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    It should then not be stated as a fact per board rules: "5) Any claims you make here should be based on legitimate sources, or be expressed as opinion, experience, or inquiry."
  2. dilettantesteph
    The University of Chicago celiac center does not recommend this supplement: Open Original Shared Link
  3. dilettantesteph
    No, I was looking for evidence for your statement that a child's allergy would require people around him to only eat food obtained from an allergy free facility.
  4. dilettantesteph
    Can you provide evidence for this statement?
  5. dilettantesteph
    I agree with healing faster with whole foods and grain and alternate grain free.
  6. dilettantesteph
    You may be safer with foods tested to 5 ppm. https://www.celiac.com/forums/topic/102665-warning-about-amys-frozen-meals/ https://www.celiac.com/blogs/12/Frozen-goods-AMYs-gluten-free-pizzanot-gluten-free-for-me.html Open Original Shared Link
  7. dilettantesteph
    I couldn't find a good leave in conditioner without hydrolyzed wheat protein. I have very curly frizzy hair that needs it or it's wild(er). Then I noticed that my hand lotion had the same consistency and started using that. It worked better than the stuff I was using before.
  8. dilettantesteph
    That policy sounds crazy. I can see not using a shared facility for food that the allergic individuals are consuming, but not for food others are consuming. I don't think that there is any science behind that. That packaging warning is not even required. What does the school do, phone all facilities of all the places that families use? Do they even check...
  9. dilettantesteph
    Not all celiacs have the same level of sensitivity or other intolerances. Just because another celiac can eat something doesn't mean that you can. You can read about that here: http://www.fda.gov/d...h/UCM264152.pdf Health Hazard Assessment for Gluten Exposure in Individuals with Celiac Disease: "Available evidence suggests that many aspects of the...
  10. dilettantesteph
    Gluten in medications: Open Original Shared Link Maybe it is the soy in the spread. Some celiacs have problems with soy: Open Original Shared Link
  11. dilettantesteph
    If it helps, I'm pretty sure that there is no scientific evidence that eating too much of something will cause you to build an intolerance to it. Think of all those people in Asian countries who eat a ton of rice every day. The adjustment period with this condition can be hard. Hang in there. Hugs.
  12. dilettantesteph
    It is a difficult situation and people can be strange and take your medically necessary precautions personally. Maybe it would help if you said that it was doctor's orders? If you explained how awfully sick you get? I find it helps to state that the risk isn't that great, but I don't want to take a chance because I get so sick. Then it sounds less like...
  13. dilettantesteph
    You could try ones which are certified to less than 5 ppm. You may be reacting to lower levels than some others. How do you do with processed foods in general? You could try eggs for breakfast.
  14. dilettantesteph
    Some reading for your husband. It a review done by the FDA about how much gluten can make a celiac sick: Open Original Shared Link
  15. dilettantesteph
    I feel your pain. Try to tell yourself that the depression is another symptom and things aren't as bad as they are seeming right now. I am on an almost completely unprocessed diet. I'm going on 7 years. My son is that same way and my daughter is close behind. I can give you the reasurrance that you do stop getting more sensitive after a few years. I...
  16. dilettantesteph
    I'm sorry that it didn't make you less sensitive, TH. So many of us are trying to find a way to make that happen.
  17. dilettantesteph
    ppm means parts per million. One ppm means that in one million parts of the food or drink, there will be one part of gluten. A part could be a cup, a pound, or a serving. A study found that the vast majority of celiacs are safe with under 10 mg of gluten per day: Open Original Shared Link According to Fasano: "would be equivalent to the daily ingestion...
  18. dilettantesteph
    EPI is exocrine pancreatic insufficiency. I take Country Life Zyme aid. They have a gluten-free facility. I tried prescription enzymes first, but had an apparent gluten reaction to them. I am very sensitive. https://www.celiac.com/forums/topic/105648-exocrine-pancreatic-insufficiency/?hl=%2Bexocrine+%2Bpancreatic+%2Binsufficiency
  19. dilettantesteph
    When your ulcer was detected, were you treated for H. pylori? http://www.webmd.com/digestive-disorders/h-pylori-helicobacter-pylori That might help.
  20. dilettantesteph
    Alter Eco rice is certified gluten-free. IgG: Open Original Shared Link It is hard enough to tell what is going on with yourself. It is much harder with a young child. Maybe ask to have a look before she flushes the toilet? It is going to be a challenge but you sound like a determined woman.
  21. dilettantesteph
    There are celiacs who can cook gluteny things for their non celiac family members. One of them was the president of our local celiac group for a couple of years. She told me that she didn't need to be very careful and was still non symptomatic and tested negative. Others try all sorts of precautions and still find that they need a gluten-free household...
  22. dilettantesteph
    Great news. Thanks for sharing.
  23. dilettantesteph
    How were you diagnosed?
  24. dilettantesteph
    I do notice feeling worse if I forget to take my probiotic. Maybe that's it? It is so hard to tell. I keep a log too, and that does help.
  25. dilettantesteph
    I had communications with anuts in which they said that their facility if gluten free. I looked at the ingredients in their trail mixes and flavored popcorn and I didn't see any gluten. Your post does not specifically state that your contamination issues are with gluten only. For extra assurance, you can buy in shell nuts.
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