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dilettantesteph

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dilettantesteph

  1. dilettantesteph
    I agree that trial and error is a hard way to try to find out if you can drink something. Super sensitivity is a pain. I guess that's why I don't have a wine that I can drink. I am currently drinking an apple vodka. Not right now though, it's 10 a.m. LOL
  2. dilettantesteph
    You are right Gemini. Correlation does not equal causation.
  3. dilettantesteph
    Here is more: http://www.examiner.com/article/bogus-paper-on-roundup-saturates-the-internet http://www.junkscience.co.uk/tag/anthony-samsel/ http://www.huffingtonpost.com/tamar-haspel/condemning-monsanto-with-_b_3162694.html http://www.gmwatch.org/index.php/news/archive/2013/14764-comment-on-critique-of-samsel-and-seneff-glyphosate-review http://ultimateglutenfree...
  4. dilettantesteph
    I did better with rice from Thailand. Eventually, though, we gave up on it completely.
  5. dilettantesteph
    They didn't get many people in the study. 13 people had 10 mg per day and 13 has 50 mg per day. Of the ones taking 10 mg per day, one had a full relapse. Does this rationalize the ppm limits for gluten-free food?
  6. dilettantesteph
    This is a research paper on how much gluten celiacs can tolerate. http://ajcn.nutrition.org/content/85/1/160.full.pdf+html They conclude that 10 mg per day can be tolerated by most celiacs and that the diet should be kept at below 50 mg per day. This is the accepted science at this point. I personally don't agree with it.
  7. dilettantesteph
    That is possible, but it could be the trace contamination that the Fasano diet is supposed to eliminate. It eliminates it by having you eat whole grain rice. Did you grind that rice flour yourself, or did you buy it already ground? Was it ground in a gluten and oat free facility? In that case it is not the Fasano diet and does not reduce possibilities...
  8. dilettantesteph
    A big contamination you feel right away and it hits you hard. A small contamination can sneak up on you. Those symptoms get worse and worse and it can be very hard to figure out what it is. I've been doing this for 6 years and this has happened to me several times. Eventually I figure out the source and fix my health problems by eliminating it. If you...
  9. dilettantesteph
    Before talking to me about specifics about super sensitivity, go here first. I have to agree with IrishHeart and notme! that this is the most likely source of CC issues. Sorry about that.
  10. dilettantesteph
    I definitely agree about continuing to see your doctors for help. They may find something else that is treatable. The fact that the Fasano diet seemed to help is an indication to me that you are sensitive to very low levels of gluten and that could be the problem. I am sensitive to very low levels myself. I have spent 6 years working on figuring...
  11. dilettantesteph
    The last time I bought buckwheat with "wheat and gluten free" on the box was within this last year. I bought whole groats and found what looked like wheat grains in three of the 4 boxes. I phoned them and was told I would be called back and wasn't. Then I wrote them using snail mail and included the questionable grains and didn't hear back from that either...
  12. dilettantesteph
    Chamomile tea, thank you for the warning. I could have used your advice when I was first diagnosed. I got glutened even by the Amy's that was not labelled as processed in shared facilities. I figured out eventually that I am unusually sensitive. That warning is voluntary just so you know. Not having it there doesn't mean squat. I grow my own chamomile...
  13. dilettantesteph
    That would explain my reaction to them then. Thanks.
  14. dilettantesteph
    Are the ones that you are eating more free of cc than the ones that make you sick? Does anyone test for gluten cc?
  15. dilettantesteph
    My son has had this twice. The second time we went to the ER and they kept him there overnight. It did not respond to the standard treatment for allergy. Finally they decided it wouldn't get any worse since it hadn't yet. It got better slowly during the next day. They mentioned hereditary angioedema and we had him tested for it but it was negative. ...
  16. dilettantesteph
    I am in the super sensitive camp and I did think that I reacted to McCormicks spices. I did better buying fresh spices in the produce department. Now I grow my own. I got a curry leaf plant for curry. Did you know that the curry mixture that you buy is an attempt at producing the same taste that comes from this plant? It grows indoors in a sunny window...
  17. dilettantesteph
    Maybe I should have said "I already agree to disagree." I've really never had much difficulty with disagreeing in this situation. It is very clear to me that celiacs vary and that what works for some does not work for all. Not everyone needs to take the precautions that I take, and not everyone can eat the things that less sensitive ones can eat. ...
  18. dilettantesteph
    I agree. I DON'T need to agree to disagree. LOL edited to add the don't that I thought I had put there to begin with.
  19. dilettantesteph
    I also had a problem with those spices. I am one of those super sensitives though.
  20. dilettantesteph
    It is my experience that soap works better to remove gluten than plain water. I don't like the idea of eating soap, so I rinse well. I don't get diarrhea from using soap, I prevent diarrhea by using soap. It is important to rinse well until there is no soap remaining. I am glad for the people who don't need to use soap to not suffer gluten reactions....
  21. dilettantesteph
    My daughter is in Montreal, so if it is possible that she could get them there, could you pm me with the name? Thanks
  22. dilettantesteph
    I've not have good luck finding safe ones. Many say on the package that they were processed on lines that also process wheat. Others tell me that when I contact them. Rancho Gordo, last I checked used gluten free facilities, but were still problematic for me. I would love to hear of really good source that works for very sensitive celiacs that is available...
  23. dilettantesteph
    I just had to add to this. A negative biopsy after 6 years gluten free means that you don't have celiac disease. This is after hearing that they don't count the lymphocytes. (Which would be all that might be expected on the gluten free diet.) There is no connection between celiac disease and GERD. There is no connection between celiac disease...
  24. dilettantesteph
    Last I heard, they were made in the same facility as their gluten containing cereals. There is a possibility of cc for those of us more sensitive. Does anyone know? Does anyone know if they test their ingredients such as the cinnamon prior to processing? This reference: http://celiacdisease.about.com/b/2012/07/11/general-mills-launches-gluten-free...
  25. dilettantesteph
    Does the tea shop also serve cakes and biscuits? Cross contamination from that is a likely source of your problems.
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