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Citizen's Petition To The Food And Drug Administration (fda) To Make Drugs Gluten-free


ravenwoodglass

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ravenwoodglass Mentor

Hi, I just wanted to make sure everyone see's this. I know it is a subject that is dear to my heart as it most likley is from many of us. We shouldn't have to wonder whether a drug is safe for us and we shouldn't have to suffer the consequences when we get one that isn't. Having to fight a gluten reaction while the body is trying to deal with whatever issues the actual ailment's effects is definately counterproductive for me. The gluten reaction can also effect the amount of the actual drug, at times making it practically useless since we don't absorb it. I feel strongly that gluten should not be allowed in our drugs, in any form.

Citizen's Petition to the Food and Drug Administration (FDA) to Make Drugs Gluten-Free

https://www.celiac.com/articles/21745/1/Cit...Free/Page1.html


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hermitgirl Contributor

There was also a mention of that in the last newsletter. Thank you for bringing this into the forum. Hopefuly we can get enough activity on this thread to keep it very visable. Everyone needs to be aware of this.

mimommy Contributor

I read through the entire petition, reply,and commentary and sent my own comments for submission, as well. I think this has a very strong chance of being passed into regulation very soon. Good for him!!! Thank you, Michael Weber!

GFinDC Veteran

Here is a link directly to the comments entry form page. I chose "Individual Consumer" as the Submitter Category.

Open Original Shared Link

Hopefully more people will comment for this change!

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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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