Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Newbie~help Could This Celiac?


persistent~Tami

Recommended Posts

persistent~Tami Newbie

My story~ have always suffered from dark circles sometimes they would get darker ,which could never be explained.These I figured I'd be doomed with the rest of my life..At age 34 came down with Shingles.Have had trouble with yeast infection,vaginal and skin.

In Jan/09 my health seemed to deteriorate at a rapid rate ,one thing after another searching for answers I began to search the net.I came across this site after almost 4 months of searching,I grateful as I am ,I'm also sad to see so many people suffering for years without even a clue to what is really wrong..The good news is there is hope!

When symptoms started in Jan/09 ,I tried to seek medical help and was told it was Psychosomatic, Basically

it was in my head... go figure. :angry:

Symptoms started with general fatigue and maliase ,then skin hurt like I had the flu,easliy fatigued,easily bruising,tingling in hands,feet ,face,legs,bloating after eating ,acid reflex,panic attacks,insomnia,irritability,DX with new optical migraines,chest pain,cramping in hands and feet,muscle spasms random areas,throat pain,trouble swallowing at times,buzzing sensation in body,burning tongue sensation,irregular heart beat,fat pads on fingers wrinkling,increased back pain with no new obvious cause,fullness in ears with fluid retention,unexplained rashes felt like razor burn ,even though I had not shaved in these areas,trouble concentrating,memory problems,dizzy,nausea,eye floaters,brain fog,balance trouble,Fluctuating between severe diarrhea and constipation,left abdominal pain that seemed to be mild and then gets worse.

Since all this started ~I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

I've noticed a change but seems gradual, is this normal? how soon did you start to feel better? Is there anything you would recommend that Im not taking?

If you can shed some light ,any advice would be appreciated.Trying to get my life back and,its tuff when no one seems to give me a straight answer.

Thank you to all who responds,I appreciate any advice.. Sincerly Tami,dont forget to laugh its better than crying :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liveenjoylife Apprentice

Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

persistent~Tami Newbie
Well first off I want to say you do sound like you are putting up with a lot there. I am no doctor but some of the symptoms you explain I had with celiac disease. I didn't even have a doctor diagnose me, I did so my self. I have been on B12 and magnisium and calcium, multivitamin and removed all wheat from my diet and I am all better now. The horrbile symptoms went away. OR you could be dealing with Chrons disease. I would talk to your doctor about both because it could be either or.

Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

leadmeastray88 Contributor
Thank you so much for your reply,I am trying to get in to my primary Dr at this moment to get tested.I also am doing self treatment and for the last 3 days have been gluten free ,i've noticed my energy level has increased and lymphnoids in armpit are starting to decrease in size.I definalty will check on the chrohns as well. Again thanks for you r support.

To get tested you must be eating gluten or you'll risk getting a false negative.

Until testing is done, eat like you normally would. Once all testing is done then you can start. :)

gfb1 Rookie
[snip]

I had my blood analysed ,it showed Candida,inflammation,paraites,uric acid,and Dx with Leaky Gut Syndrome,positive ANA with speckled pattern,low Vit D,xray of hand showed subchondral bone cyst,I've become lactose intolerance,Migraines from hell!! and all the above.

I have leaky Gut and Candida,but also feel this may all be due to having Celiac disease,I dont know where to start first ..do I kill the Candida ,do I heal the leaky gut or take care of the possible Celiac???????

Is is possible to take care of all at once?

I'm currenty taking~Priobiotic, Argentyn, Daily Health Vit,Imuzyme,OPC,Selenium,Vit E, colostrum,garlic tabs,vitex,Vit C,And NAC..

Previously was taking fish oil ,essential fatty acids ,MSM with chondrotin and was told not to take these by the Dr who did anaylysed my blood and recommended my current meds..

[snip]

whew... you've got a ton to deal with... i almost hate to ask... but;

who tested for what?? you've got a small reference to "paraites" . did you mean "parasites"?? if so, which one/ones??

parasites in the blood are very serious. you need to check this out first thing to tackle, BEFORE all the rest.

i also don't intend to be mean-spirited, and want you to find the relief and help that you deserve..... but (yes, another but) the candida diagnosis is probably meaningless and you note that you have a "Dr" who "analyzed my blood and recommended my current meds.."

None of the things you mention are medicines. they are (at best) nutraceuticals -- with little or no effecitve action. is this a medical doctor (MD or DO), or something else?? its really lousy to be sick and feel abandoned by the medical establishment; but, you've got to hang in there and find a professional who can help.

everyone on this list has had some idiot-of-a-doctor say something stupid along the way (there are a couple of threads in the forum). just walk out the door, report them to the chamber of commerce and local/state doctors association -- then FIND SOMEONE NEW. we recently moved to scenic southern NJ and found a gastroenterologist who told us he is treating >150 celiac patients and has been a real blessing. they do exist and, sometimes, in the oddest places!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      9

      Celiac flare years after diagnosis

    2. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      4

      Skin issues

    3. - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

    5. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
    • Aretaeus Cappadocia
      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...