Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Success Story!


GF avenger

Recommended Posts

GF avenger Apprentice

Hiya gang.

Thought I'd return with 9 or so months later with my gluten-free success story, partly in hopes of bolstering those who are struggling with some aspect of their diagnosis (or lack of), and also just to celebrate feeling so much better!

Looking back now I can see so many more things that were wrong with my poor body, beyond the expected digestive upset:

My teeth were falling apart - 3 years after symptoms began, I had 5 cavities. Never in the 28 years previous had I had any! I am a devoted brusher and flosser, so I think malnutrition did it.

I had a strange, small, rash-like lesions on my arms. Not diagnosed, but suspicious, don't you think? All gone now!

When I'd scrape my legs on things like boats, the scrapes would take 5 weeks to heal, and get infected multiple times. Just two weeks ago, I stubbed my toe almost badly enough to need stitches, and it completely healed in a week.

My blood sugar yo-yoed all over the place, and I'd bonk before during after any workout. Now I am even-steven. (Though I've learned to eat lots of small meals.)

I was reactive to every food. Dairy made me, well... gassy, and eggs made me drunk. Some fruits put me to sleep, and we all know what gluten does... Still off the gluten of course, but I can eat EVERYTHING else. Hurray!

Brain fog made reading and studying absolutely impossible, and most conversations inadvertently hilarious, for most of the last 5 years. No longer a problem! w00t!

Fatigue fatigue fatigue. Strangely, this peaked in months 6-8 of being gluten free. Fortunately, I was off work at the time. Now I'm back to teaching at a community college, and am slowly adding more activity back in. Thank God.

I was beginning to wonder if I was menopausal at 30. No longer.

Ah! I have always been super skinny, and found it impossible to gain weight. Now I have a very pleasant layer of fluff. :rolleyes:

I'd get horribly sick at least twice a year. I did not get sick ONCE this entire winter. Take that, avian bovine flying pig flu!

When I do get accidentally glutened, I seem to recover much faster.

My poor bladder took most of the hit from gluten, and it's doing much better now, thank you.

I'm so much less of a irritable, depressed wacko than I once was! I sorta feel like I'm coming back to myself, bit by bit, day by day.

Hang in there, all you newbies!! It can be a long journey of learning to be gluten free, and perhaps tracking down additional diagnoses, but you will feel better!

Those of you who have similar stories - would you mind posting them if you have the time? I think we'd all like to hear of other happy endings...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samcarter Contributor

I can so relate to the healing faster! I fell hard on one knee (tripped over a branch while running to a kid with a bad scrape as well) and scraped it hard, tore off several layers of skin. Normally this would have taken weeks to heal, but it's healing so fast I can practically feel the skin regenerating. No kidding!

I used to fall a lot. Not tripping over things, just my own feet. I would land with my feet on their sides, rather than the bottoms, and would fall. I used to have huge bruises all up and down my legs, just from casually bumping into things. No more! I suspect I had ataxia throughout childhood, but it was brushed off as me just being clumsy. I don't drop things nearly as often, and I feel more balanced. No more vertigo on staircases.

Bastet Newbie

Thank you for coming back to report your success. I was diagnosed on May 12, so I am really new to this. I was also very surprised because I never noticed any gastro distress after eating foods with gluten. However, the brain fog, anxiety, fatigue, and dental problems, all ring true. I look forward to my own success story when I can once again read and comprehend or ride my bike, etc. Thank you!

mushroom Proficient

I think the most remarkable thing for me is the disappearance of UTI's. The two years prior to going gluten free I had an almost constant UTI; I would treat with antibiotics and still not test clear, and on and on it went. I was so tired of antibiotics. I finally discovered cranberry tablets and they helped some.

But now, GONE!! Haven't had a sign of one in over a year, and no more cranberry tablets either.

It's funny, my mother was plagued by them (and by GI issues), and both sisters; my gluten free sister no longer gets them, but my gluten eating sister still has the plague (and a lot of celiac symptoms she chooses to ignore) :(

shirleyujest Contributor

As a newbie, I definitely appreciate hearing of your success and your humorous recounting of it. Good for you, you did the hard work and now reap the reward. God bless!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Pain in the right side of abdomen

    2. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    4. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    5. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,052
    • Most Online (within 30 mins)
      10,442

    Les0924
    Newest Member
    Les0924
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
    • Aretaeus Cappadocia
      I don't clean the kasha. It does take more than a minute but less than half an hour. However I understand the need for efficiency in the morning routine. I am not familiar with the lemon thing. Another one to consider is quinoa (I buy Kirkland, labeled gluten free). It is probably better to rinse the quinoa before cooking. I don't notice it myself but a lot of people don't like unwashed quinoa because of saponins that are removed by a rinse. All of these are reheatable if you want to make a larger amount ahead of time. Also, it may be possible to use the "overnight oats" strategy with some or all of these, but I have to say I never even thought about it until writing this response.
    • Aretaeus Cappadocia
      I like the Wolff's brand coarse kasha in the grocery store, but I also like the Azure Standard products (AzureStandard.com) for buckwheat, amaranth and other ingredients. The Wolff's package in my pantry is labeled "gluten free". Azure says that their packaging plant has an allergen control program but almost none of their products are labeled gluten free. I have been relying on Azure a lot for my gluten-free diet and the global outcome has been good but I never know for sure for any given product. I eat something I bought from them pretty much every day. (wish I could tell you something more definitive) Full transparency: I was diagnosed with celiac by antibody test (10x the threshold) and by biopsy, and now my antibody levels are 1/10 of the threshold, so my diet appears to be very gluten safe. However, I never had any clear acute symptoms so I never know for sure when I'm consuming gluten.
×
×
  • Create New...