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Period Of Time Eating Gluten That Then Leads To Other Autoimmune Disease?


UnhappyCoeliac

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UnhappyCoeliac Enthusiast

Was watching this:

And in short immune response created by celiac gets the immune system hyper which then eventually leads to further auto immune diseases but how long is the time frame from simply immune response to gluten too other auto immune diseases?


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ENF Enthusiast

I don't know the answer to your question, but I wouldn't put too much stock in the words of the nutritionist featured in that video. She spends 15 minutes going on and on about Celiac Disease, and never once uses the term, or even the word "Celiac". She will only call it Gluten Intolerance. There are other things about her that led me to believe that she's a quack, in particular her clinic that offers chelation therapy.

Gemini Experienced
Was watching this:

And in short immune response created by celiac gets the immune system hyper which then eventually leads to further auto immune diseases but how long is the time frame from simply immune response to gluten too other auto immune diseases?

I think the answer to that is a big mystery. As most people cannot tell when they actually triggered for Celiac and mostly make a guess at when, it may be impossible to set up a time frame. Plus the fact that people are different with regards to the mechanism of acquiring more autoimmune diseases so it could vary from person to person.

I think the best response is that it partly depends on how long it took for a diagnosis to occur and at what age a person is diagnosed. The younger you catch it, the less likely you will move on to other autoimmune problems. I was diagnosed at 46 and by then, I had 3 other autoimmune diseases on top of Celiac, of which I had had symptoms for years. :(

JillianLindsay Enthusiast

Isn't the reverse also true: that other autoimmune diseases can put you at higher risk for celiac disease? I was dx'ed with asthma as a child and celiac disease as an adult. I have a cousin who has diabetes and is checked for celiac disease and watches for signs of it because of the comorbidity. I don't know if it's that celiac disease actually causes other autoimmunte diseases, it's more likely that having one creates a greater likelihood that you have another. [sorry if this is a bit out of context, I did not watch the video]

Jillian

ravenwoodglass Mentor
I think the best response is that it partly depends on how long it took for a diagnosis to occur and at what age a person is diagnosed. The younger you catch it, the less likely you will move on to other autoimmune problems. I was diagnosed at 46 and by then, I had 3 other autoimmune diseases on top of Celiac, of which I had had symptoms for years. :(

I agree with this completely. I had celiac from around age 5 but I didn't develop other autoimmune issues until I was in my thirties. Then they hit hot and heavy. Thankfully many of my other autoimmune related problems have gone into 'remission' in the years since I was diagnosed.

Everyone is different and celiac can present in many different ways so it is really hard to give a real time frame though. I do think though that the longer undiagnosed the stronger the chance of that development because the antibodies have more time to effect our organs. I think that after we are diagnosed and on the diet strictly that our chances for developing another autoimmune issue may go down.

Gemini Experienced
I agree with this completely. I had celiac from around age 5 but I didn't develop other autoimmune issues until I was in my thirties. Then they hit hot and heavy. Thankfully many of my other autoimmune related problems have gone into 'remission' in the years since I was diagnosed.

Everyone is different and celiac can present in many different ways so it is really hard to give a real time frame though. I do think though that the longer undiagnosed the stronger the chance of that development because the antibodies have more time to effect our organs. I think that after we are diagnosed and on the diet strictly that our chances for developing another autoimmune issue may go down.

Yup....I think this is the crucial point that the medical profession is missing. Wheat is SUCH an antagonist to the immune system in many people, and considering that 70% of your immune system is developed in the gut, it would make sense that continued ingestion of wheat is going to place a huge load on the human body.

If a person goes many years without a diagnosis, the immune system will constantly be looking to other organs for attack. With all this constant inflammation going on, AI diseases start to accumulate.

In hindsight, I am convinced I triggered at a very young age because I always had stomach issues as a kid and my appendix blew when I was 8 years old. When they did the operation to remove it, my intestinal tract was VERY inflamed....which they blamed on my appendix. Then I hit the honeymoon phase and I had very little problems throughout my teen years. It came back with a vengeance in my mid to late 20's and then it took another 20 years to obtain a diagnosis. In all fairness, no one looked for Celiac Disease back in the 1970's. I am convinced I would not have had all these other AI diseases had I been diagnosed at a younger age. However, like Ravenwoodglass, my other issues have greatly improved following the gluten-free diet. They are still there BUT they are much better.

UnhappyCoeliac Enthusiast

Well im 23 diagnosed at 22 last year.

Dont believe I had celiac too long. Never had any sortof gastro issues till 21. At 21 I simply kept getting diarrhea all the time. I put it down to too many pizzas but then Celiac was discovered. In the year I have been diagnosed I went 3 mths gluten free recovered all deficiencys and only had slightly raised gliden or whatever it is, then fell off the wagon for like 6 mths probably undid all my work, on and off for a few others and im a few days clean.

I am trying to pull myself together enoough to realise Ive got a chance to miss out on all the other nasty stuff since im only 23 if I can just stick to the diet and not let my stomach get the better of me!

Good answers people, is is interesting that ther auto immune disease somewhat resolve with the elimination of gluten


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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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