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New To This Forum, Gf Since 3/04

keenpetite

By keenpetite
in Coping with Celiac Disease

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keenpetite Newbie
keenpetite
Posted

I was diagnosed after suffering for over 15 yrs with severe digestive problems & a rash on both arms. My worst enemies are wheat, corn, oats, beef, peanuts, dairy. I suspected Celiac 3/90, went to a MD only to be told "You're not anemic, so you it can't be Celiac Sprue". At this time I was going thru severe bouts of digestive problems. Extreme widespread bodily pain began soon after, sent to rehumatologist & was told I had Fibromyalgia, sleepless nights, fatigue plus became my costant companions.

Fast forward to 3/04 a new pcp suspected food allergies & after 18 days on a elimination diet & reintroducing a new food every few days we were finally able to pinpoint the true culprits.Rash has cleared up very well. A few problems continue. Happy to report I've been gluten-free since then & do not miss any of the forbidden fruits (pun intended ) lol

Please, I'd like to know, anyone, when a non gluten-free food is ingested is there any severe bodily pain within 10-15 minutes?

Any info is greatly appreciated.

I've been able to find quite a few delicious gluten-free recipes that I'm literally having a ball with.

My best regards to all,

keenpetite :o

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Merika Contributor
Merika
Posted

Hi and welcome,

Everyone's reaction to non gluten-free foods is different, and pain in 15 minutes seems like it could indeed be possible.

Merika

KaitiUSA Enthusiast
KaitiUSA
Posted

As said in the previous post...everyones reactions are different.

I do not get pain..I get nausea and I can usually tell right away. My reactions last about 2 weeks and the 7th day is usually the worst.

Wow in 90 your doctor told you since you weren't anemic you didn't have celiac...sounds like the typical doctor. Not everyone even gets symptoms and there are over 200 symptoms so not everyone would even get the same ones. I feel bad for the celiacs back then because I know now it's still very hard and technology and foods and just everything has advanced so I can't imagine how hard it was then. Finally celiac is starting to be discovered more by doctors and the general public so maybe people won't have to go what we went through in the future.

pixiegirl Enthusiast
pixiegirl
Posted

I get pain when I ingest gluten and mine starts about 20 minutes after eating gluten, but its at its worst the following day. I had a lot of your symptoms... fatigue, I've been diagnosed with Chronic Fatigue Syndrome and I'm not sure I ever had that, I'm almost symptom free as long as I stay away from gluten. I have various rashes and had years of sleepless nights.

Best to you! Susan

ianm Apprentice
ianm
Posted

Most doctors are idiots when it comes to this disease. I was not anemic, I was very overweight before I found out what the problem was. I don't experience pain but whenever I get glutened I don't always get the same reaction. I usually feel fatigue and brain fog but the last time my guts were churning a bit.

I have found so many new and better foods to eat on a gluten-free diet that I just don't miss the things I used to eat.

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