Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Subtle Symptoms Are Frustrating

soulcurrent

By soulcurrent
in Coping with Celiac Disease

Recommended Posts

soulcurrent Explorer
soulcurrent
Posted

I think I was glutened a couple of times this week, but it's hard to tell because my symptoms were always pretty mild. I'm expecting them to get more pronounced the longer I go without but right now I can't tell if I've accidentally had gluten or if it's just a coincidence. My biggest symptoms have been a little bloating and some gurgling. I almost wish there was more going on so I'd know for sure and that could help me figure out what did it. This week I think I know anyway. I went to two restaurants and ordered from the gluten-free menu but still had symptoms (mild though they were) within a couple of hours. Its not uncomfortable and I probably wouldn't notice at all if I wasn't on the watch for it.

Sheesh. I guess I just needed to get that out there. I'm still struggling with the whole "none, ever? but I hardly have symptoms!" mindset.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


homemaker Enthusiast
homemaker
Posted
I think I was glutened a couple of times this week, but it's hard to tell because my symptoms were always pretty mild. I'm expecting them to get more pronounced the longer I go without but right now I can't tell if I've accidentally had gluten or if it's just a coincidence. My biggest symptoms have been a little bloating and some gurgling. I almost wish there was more going on so I'd know for sure and that could help me figure out what did it. This week I think I know anyway. I went to two restaurants and ordered from the gluten-free menu but still had symptoms (mild though they were) within a couple of hours. Its not uncomfortable and I probably wouldn't notice at all if I wasn't on the watch for it.

Sheesh. I guess I just needed to get that out there. I'm still struggling with the whole "none, ever? but I hardly have symptoms!" mindset.

soulcurrent ...I am finding for myself anyway, that since I have gone gluten-free, I am more in touch with my body signals and that is a GOOD thing! I am learning to "tune" in to what my body is trying to tell me. I think it is a learning curve for many newly diagnosed to get in touch with what is good for our body and what it not...

I think when newly diagnosed and we start our gluten-free diets our bodies are going through tremendous changes...healing, getting used to new grains, detoxing from gluten you know all the fun stuff... LOL ;)

The only advice that I also try to tell myself, is give yourself and your body time to heal, tune in to what your body is trying tell you, and your tummy is going to be sensitive for a long while...I mean how many years were we eating gluten? :P

Gluten is not our friend...and it pays to remember that always...

Hummingbird4 Explorer
Hummingbird4
Posted

I completely understand because my symptoms are subtle or non-existent, too. I honestly don't know if I have been "glutened" in the past 15 months, because I haven't experienced any definitive symptoms after eating something questionable. Since I eat a wide variety of foods, go out to eat at restaurants or other peoples' homes sometimes, have been on a couple of vacations, etc., chances are good that I have been glutened and didn't know it.

My advice is to do your due diligence to avoid anything with gluten. Question restaurant servers about how food is prepared, don't eat anything questionable at parties, empty your kitchen of gluten if possible, take safe food along with you everywhere you go. Do the best you can. And don't worry about every little stomach gurgle or bit of bloating. I've had my stomach gurgle after I've eaten food that I know was 100% safe. Stomachs just gurgle sometimes. :P

Good luck. It gets easier but it's still hard sometimes!

tarnalberry Community Regular
tarnalberry
Posted

You hardly notice your symptoms, but you don't know how much internal damage you're doing. And that's what keeps me from "ignoring" cross contamination risks. Maybe you only feel a little bloating, but your immune system has two weeks of tearing down your intestines. Do that too often, and you increase your risk for too many rather unpleasant (read: deadly) things. Not worth it to me. Call it "the fear of the unknown death" if you like. :D

soulcurrent Explorer
soulcurrent
Posted
  • Author

I keep repeating to myself that the damage is on the inside. Somehow I still feel like this is a big trick people are playing on me.. :unsure:<_<

ang1e0251 Contributor
ang1e0251
Posted
I keep repeating to myself that the damage is on the inside. Somehow I still feel like this is a big trick people are playing on me.. :unsure:<_<

Sometimes I wish we were like the pipe people in the commercial, the ones that can open a little door to their insides and check the gage to see how their feeling. If we could see the internal damage it would sure be helpful. Since we can't, we have to rely on occasional testing to see how we're doing. It's true, you will be more aware than ever of the subtle symtoms you have. Maybe over time some problems will clear up for you that you never expected were related to celiac disease. You may have thought that was just your "normal".

Hang in there. Your sticking with the diet will pay off in the end.

soulcurrent Explorer
soulcurrent
Posted
  • Author

Yep I think that's it.. the way I feel now feels normal but it's probably not. I haven't had any noticeable changes since going gluten free but I'm hoping for something.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Zaalouk moroccan eggplant salad

      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped...
    5. Scott Adams
      0

      Celiac.com Video News: April 2026

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,058
    • Most Online (within 30 mins)
      10,442
    Barbjwils
    Newest Member
    Barbjwils
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
    • xxnonamexx
      1 Year Elimination Diet journey

      By xxnonamexx · Posted

      I checked consumer labs that I'm a member of they independently check products for safely and claims the wolfs was rated great and bobs redmill buckwheat cereal. Ultra low gotten no dangerous levels of arsenic heavy metals, mold, yeast etc. plus they mention to refrigerate. I wonder if the raw buckwheat they rinse bc it's not toasted like kasha. Toasted removes the grassy taste I have to try the one you mentioned. I also bought Qia which is a quinoa mixed got great reviews. 
×
×
  • Create New...