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Type 1 Diabetes And Vit. D Deficiency

itsallgood

By itsallgood
in Related Issues & Disorders

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itsallgood Rookie
itsallgood
Posted

BACKGROUND: Since he had infectious EBV (Epstein Barr) three years ago, he's really never been the same. PERPETUALLY NAUSEOUS, CRAPPY IMMUNE SYSTEM... He was diagnosed with type 1 diabetes a 1.5 years ago.

At our first appt. a few weeks ago, (with this dr.) he said that he had negative tests for Celiac from previous dr. but they arent always accurate, so he tested for Vitamin D, which came up very low. I went ahead and put him on gluten-free diet in the meantime and within a few days he went from being gray, in bed, nauseous, sore, to his normal self again.

When he called with results, he said the Celiac test that was previously done was 95% accurate and Celiac can probably be ruled out. He put him on Vit. D supplements (50,000) and said that he'd like to test for "sprue". I thought that was the same thing. He also said his hemoglobin was a little high. Anyone have thoughts? I will for sure keep him on the gluten-free diet.

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GottaSki Mentor
GottaSki
Posted

I dont have quotable figures on how many Celiacs test negative, but the figure of 95% accurate sure sounds wrong -- maybe someone else has data.

I too thought Sprue was Celiac -- as in the former common name for Celiac Disease was Celiac Sprue -- my primary actually called it Celiac Sprue when I tested slightly positive on my tTG IgA.

Glad the diet is working -- it gets easier and is certainly worth improved health!

Good luck to you and your family.

itsallgood Rookie
itsallgood
Posted
  • Author

sorry!! still getting the hang of posting! I am beginning to wonder if the dr. said his hemoglobin was low, not high. We've been to so many docs and had so many tests this past 3 years that I can't keep it all straight sometimes. I'm just looking for anyone who might see a connection between all of his diagnoses.

mushroom Proficient
mushroom
Posted

I would suggest that you get a copy of his results, and post them here on the forum, with the reference ranges the lab uses, and let our forum "wizards" take a look at them. Not all doctors are good at interpreting the tests and not all doctors run all the appropriate tests :(

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    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

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    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
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