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Can Any 1 Tell Me What Symptoms Cleared After Going Gluten And Or Casein Free?

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I have lots of lifetime issues that have never been resolved. I am nervous about some of the issues resemble lyme. I am just now being told to go gluten and casein free and will be doing so but I am finding myself saying " is is really possible that all these strange lifelong symptoms can be from gluten and casein or both"

Can anyone give me a list of symptoms they had that cleared after going either gluten or casein free or both?

1)swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

2)I have headaches every day I wake

when I sit down tingling in my foot (but may be a back issue thats unknown)

swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

3) hormone issues


5) specks of white stuff that comes and goes in my throat in the tonsils


7) chronic extrem fatigue especially after eating

8) dark under eye circles and often wake with puffiness-dr sayd adrenal related but unsure about that but I do have adrenal issues

9) sinus mucus all the time

well there is more but I will leave these for now


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For me...going Gluten Free...solved my constipation, chronic headaches and joint pain

Constipation, Gas, Bloating, Abdominal Pain, Ataxia, Brain Fog, Joint Pain Headaches

Bloodwork Negative

Went gluten free 10/02/09

Immediate and Positive intestinal improvement with improvement in headache frequency

Enterolab results 11/23/09 (after one month gluten free)

Fecal Anti-tissue Transglutaminase IgA 10 units

Fecal Anti-gliadin IgA 9 units

Fecal Fat 1267 units

HLA-DQB1 Allele 1: 0201

HLA-DQB1 Allele 2: 0202

Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2)

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For me the first improvement was no more bloating...just prior to diagnosis I was severely bloated every afternoon/evening -- looked about 8 months pregnant that would deflate by the next morning.

Other improvements were all digestive - gas, constipation, heartburn.

I still have many other symptoms -

stiff/sore upon rising in the AM - improves once moving

3-4pm extreme fatigue/fog/joint pain/stiffness - basically can't function after 4pm


severe heat intolerance

I was recently diagnosed with Fibromyalgia, but am hopeful for more improvement as more time passes gluten-free.

Good Luck and best wishes for quick healing.



Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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When I got my enterolab results back I was shocked to see I had a soy intolerance as well as gluten. I didn't know anything about soy intolerance so I searched for symptoms. This is when I had a big aha! moment.

I stopped gluten the end of July and while I felt some great improvements I still had inexplicable weight gain (after loosing initially when going gluten-free), big D, cramps, brain fog, insomnia, headaches, dehydration, rashes, tingles in my hands and feet. Plus a persistent sore/scratchy throat, raspy voice, a voice that would disappear, and mucusy sinus issues. This one is weird: sometimes my tongue just can't make words. It feels weak. The fatigue is awful. My RA has been acting up as well.

Search for soy intolerance and see if it describes your issues, I think it does but you would obviously know best. :)

The other Aha! moment for me is how soy can mess up your menstrual cycle. My periods are 7-10 days long and it's been this way for 5+ years. Docs kept telling me, this is just you. Well, it looks like it may be soy related as well.

Good luck!

40 year old former foodie on a quest to feel better!

-IgE to oats and rye

-Diagnosed with
via endoscopy/colonoscopy Oct '10

diet since June '10, Positve
test, July '10

non-celiac gluten intolerant
June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)

June '10

Gluten free
since July '09 &
Soy free
since December '09

Dairy free
since '06

IBS & Sjogren's
diagnosed '05

diagnosed as a toddler

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So my boys are the gluten-free ones. My test came back negative though now that I'm mostly gluten free too (they're young and most processed gluten-containing foods that I would eat has soy or dairy in it). But I'm starting to notice reactions to the times I eat gluten. Like when we order pizza after the kids go to bed. :)

But casein free, that I can address. I actually found out about my intolerance or whatever you want to call it - nothing's official - when I had to take it out for my baby girl. I've been casein (and soy) free since July and I most definitely react to casein. Soy I'm not sure as my daughter reacted so strongly I'm not ready for a challenge. But once the dairy was gone I realized how much it affected me. The big symptoms? Migraines, sinuses/throat filled with mucous, fatigue, some bloating/gas but the worst thing for me was the constant cramping. I felt like I was on my period or ovulating ALL the time. I felt so yucky. Also caused a bit of discharge. And cravings? Completely gone. Amazing!

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Check out my signature, below. All symptoms improved - except for white cell count which I have not had checked. :)

Also, years back, I suffered from almost a full year's worth of chronic fatigue with swollen glands every day and a strep-like sore throat every morning and night. I don't know if gluten-sensitivity had anything to do with it, but since you mentioned the swollen glands, I thought I'd mention it, too.

Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

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