Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get Hungry All The Time After Going *casein* Free?

CGally81

By CGally81
in Coping with Celiac Disease

Recommended Posts

CGally81 Enthusiast
CGally81
Posted

A lot of people report that after they go gluten-free, they become hungry all the time, and it takes forever for the hunger to go away. That's what happened to me when I first went gluten-free in August. I was so hungry I had to eat like a full meal every hour or two. It gradually got better over time, and eventually became more tolerable, and manageable.

Until I discovered that Fudgsicles contained gluten, and I'd been eating a lot of them. I removed those from my diet in October, and saw my hunger drop for the next few days, then suddenly rapidly spike afterwards and I became miserable again. It's slowly gotten better week after week, but more slowly than the first time. I also saw a return of my gluten withdrawal symptoms too.

Well, since Sunday, I'd been going casein-free in an attempt to find out what's been causing headaches I had that had returned. I noticed that the headaches tended to be reduced after a BM, actually, so that might be a hint. Still, I'm very afraid. I'm afraid that my hunger will spike yet AGAIN because I removed casein, just like when I removed most of my gluten, then the remaining amount of gluten.

I hate being hungry all the time and lacking energy. I do NOT want to go through this again. My hunger has gone down noticably today, and I'm wondering if that's because of the casein, or because of the bathroom yesterday (I was VERY hungry yesterday, but had several BMs late at night and felt my headache go away. My decrease might be related to that, or might be the casein). I also felt some of gluten withdrawal symptoms a bit more than usual.

Anyway, I'd like to know what to expect here. Has anyone here, who went through the "hungry all the time" phase after removing gluten, also gone through the same phase after removing casein? If so, I'm not looking forward to it at all, especially with Christmas vacation coming up. How bad was it? Was it as bad as when you removed gluten?

Any help on this matter, I'd really appreciate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,864
    • Most Online (within 30 mins)
      7,748
    RobiBob
    Newest Member
    RobiBob
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • xxnonamexx
      Supplements for those Diagnosed with Celiac Disease

      By xxnonamexx · Posted

      Try a multivitamin maybe it will cover what you are deficient in.
    • cristiana
      Refractory Celiac disease - what to do

      By cristiana · Posted

      Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to.   But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd seen similar cases.
    • trents
      Celiac Disease Comprehensive Panel

      By trents · Posted

      Yes, being off gluten for 3 months would likely yield negative results. To get accurate testing redone you would need to restart gluten consumption for several weeks (the "gluten challenge") to the tune of at least 10g of gluten daily (about the amount found in 4-6 slices of wheat bread).
    • trents
      Refractory Celiac disease - what to do

      By trents · Posted

      That is one of the tests covered in the article I linked you above.
    • RMJ
      Refractory Celiac disease - what to do

      By RMJ · Posted

      Antibodies to Deamidated gliadin peptides.  It is another celiac antibody test. The main test is the one you had, TTG,  But a full panel will also include DGP IgA and IgG.  I was positive on all of them!
×
×
  • Create New...