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My 8 Year Old...too Late For Celiac Diagnosis?


KekesMom

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KekesMom Newbie

My 8 year old is showing signs of celiacs..is 8 years old too late for a celiac diagnosis? Does it come out of the blue like this?


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tarnalberry Community Regular

Celiac disease can be triggered at any time. The average age of diagnosis is actually well into adulthood.

Ahorsesoul Enthusiast

I do not believe there is an age limit.

plantime Contributor

I was 40 when I was diagnosed, so I do not think 8 is too old.

nutralady2001 Newbie

There is no age limit. I was 8 in 1956 and already having problems. I wasn't diagnosed til I was 58 and had a multitude of other problems that may have never eventuated if my doctors over the years had got their heads out of their collectives and joined the dots.

I now have vitamin deficiencies, auto-immune thyroid disease, scoliosis, arthritis and osteoporosis thanks in no small part to my "IBS" diagnosis and the "learn to live with it" solution

buffettbride Enthusiast

My daughter was 9 when she was diagnosed. :-)

Mskedi Newbie

My grandmother was in her 70s when she was diagnosed -- eight is DEFINITELY not to late. And if you catch it early, your 8-year old should be spared some of the pain many on this board dealt with for decades.

Good luck.


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Skibunny Newbie

Never too late. Takes three elements - genetics, gluten and a trigger. The trigger can happen at anytime - stress, illness etc.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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