Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

All Eyes On Me

LovingLife7

By LovingLife7
in Gluten-Free Restaurants

Recommended Posts

LovingLife7 Newbie
LovingLife7
Posted

Hey everybody!

I am a newbie to gluten free life (i was diagnosed in january) and it has been rough so far. The longer I go, I get much more used to the foods I must eat and how to order when i am eating out. But one thing that I can NOT get past is all the uncomfortable, unwanted attention I always get when my friends or family and I go out to eat.

I have an amazingly supportive group of friends and family, but it just seems like every time we go out they are always so concerned with what I am going to eat and it always sparks a huge converstion and million questions about Celiac disease and eating gluten free. I absolutely LOVE that they care, trust me, but I hate feeling like Celiac is a part of me, something that we always talk about when my name is brought up.

I want to be normal, i want us to talk about regular things high school girls talk about when they go out, not gluten! I dont know how to tell them that I just do not want to talk about my problem when we are out trying to have a good time, without sounding like a total jerk. I wish it was never brought up anywhere, anytime :( I don't want Celiac to be who I am!

Any thoughts or support? I appreciate anything :)

Thank you!

-LovingLife7

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Patience. Your friends and family aren't living with this every day like you are. And you are the only one person that each friend and family member will be asking. So any one given person might ask you twice, but if you've got twenty of those people, that's forty questions - in your eyes, but not theirs. I think perception is a hard part of this to begin with; it's probably less attention on you than it feels, though I know that doesn't help a lot.

Over time, as there are fewer questions to ask, and the novelty wears off (it's only been four months!), you'll get fewer and fewer questions and it will become easier.

Like it or not, though, celiac IS a part of who you are. Just like your preference for one type of food or dislike of another is. Just like your speaking mannerisms. Just like your dress habits. Just like your favorite activities are. It's a part of you. It doesn't have to be "THE BIG PART", but know that it is still one of them.

digmom1014 Enthusiast
digmom1014
Posted

I agree with Tiffany on this one. It has not been long enough for those folks who care about you to see you feeling well. Once you feel more comfortable ordering/picking a resturant, others will too. Several different friends now even say, let's go to this place they have a great gluten free menu.

(I have been gluten-free 2 1/2 yrs.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
      1

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

      Dang. I had a moment of hope that I could change my BP med and get off the gluten-free diet. Nope. More seriously, I hadn't seen this articles about this phenomenon before. This is one of the possible answers for people who post here about having celiac symptoms (including biopsy) but normal IgA levels, especially if they are saying that diet isn't helping...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    3. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Recipes & Cooking Tips
      2

      Zaalouk moroccan eggplant salad

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:
    4. Scott Adams
      - Scott Adams replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      I was diagnosed with celiac 15 years ago.

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product...
    5. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Zaalouk moroccan eggplant salad

      By Aretaeus Cappadocia · Posted

      oops. I didn't see that before posting or I would have at least referenced it. The two recipes are pretty similar, but I think the newer one is a little simpler/faster. Next time though I will search more before posting.
    • Scott Adams
      Zaalouk moroccan eggplant salad

      By Scott Adams · Posted

      I love Middle Eastern food and eggplant, and here is another version we shared some time back:  
    • Scott Adams
      I was diagnosed with celiac 15 years ago.

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, that time period was a shingles pre-cursor, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      I was diagnosed with celiac 15 years ago.

      By trents · Posted

      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
×
×
  • Create New...