Newbie Has Tested Weakly Positive For Cs

[ivegotitalso]

hi folks- new here. 54 yr old female w/ mother who died contributing factors of CS since she was 65, of askenazi jewish background. now i think i got it also, went running around from doc to doc rhuemys, gi's, you name it. came down with bad case of pancreatitis to the point where ct scan showed up head of pancreas half chewed away and in much pain, atrophied. severe back pain, never had an idea maybe CS was the culprit although new about how sick my mom was with it, but her symptoms were IBS, i dont have any of that which is why i didnt think i had it, i go to rhuemy, he tested me for c3,c4, smiths, smooth mucle, rna, etc, only one test came back as weakly positive, he tells me go call your GI and tell him this and hangs up on me. nice guy, wouldnt even tell me what weakly positive meant had to google it which i found out sensitive to celiac sprue. shesh.

am leaving fl to go to richmond Va to a very good GI doc who is gonna do an EUS and maybe a ecrp to see if i have any stones stuck in my pancreatic ducts. or any nodules. beleive me i am very scared. went to the er a few night ago with servere pain in back from pan, did a ca-19 blood test came back 38, one point above normal for pan can. that was in april, had test repeated last week waiting for results now. am now on 7 day depol medrol steroid pak which helped to calm down the pancreas, so that i will be able to fly up to richmond to see this gi. docs down in this part of fl, dont have the transducer to do an eus!!! holy cow dont get sick and come to fl you will be out of luck here. while in the er two days ago to treat me for the pancreas, they gave me one bag of iv water, that is it. not protocol for treating pancreatitis!!! i left to go home and see my gp who put me on the depol medrol and said we are taking a risk here in giving you this as it could make you worse, i said i dont care treat with the steriods, i felt like i was gonna die anyways. so sunday on the 13th i am flying up to see this other guy and hopefully i will know some answers, at the very least maybe repeat the ct scan with contrast to see damage done to pan. if this is related to cs, i could have done some really bad damage, as your pan can auto digest to the point of wearing away veins/arteries which could cause massive internal bleeding from digestive juices hitting it. oh boy ....i am very scared.... anyone else ever have this happen? either this is what it is or i got pan can and i dont want that b/c you dont live very long with that!

[mushroom]

Wow, you are dealing with some pretty heavy stuff right now. My heart goes out to you. Stay strong and I hope that all works out well for you. [[[[HUGS]]]]

[ivegotitalso]

Wow, you are dealing with some pretty heavy stuff right now. My heart goes out to you. Stay strong and I hope that all works out well for you. [[[[HUGS]]]]

thanks, anyone else been through the mill with this stuff?

also weakly pos????? oh come on now, how in the world could it be only weakly pos? and me have realy bad pancreatitis, i dont smoke/drink for 14 yrs now.

me thinks these docs down here dont know anything about this and not even my gi after i told him about my mom who had it real bad, he did a scope on me and said everything is neg with biospy, just saw lots of inflamation in stomach, but poo-poo everything else. i thought these gi are suposed to know about CS and test for that...what is wrong with these guys? i got to be my own doctor now? i guess so