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Tired And Frustrated And Still Not Feeling Well


Sharon326

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Sharon326 Newbie

Hi I am 46 years old, was diagnosed hypothyroid 5 years ago after 3 years of unexplained weight gain, hair loss and exhaustion, etc... last year I was diagnosed with Hashimoto's Disease and about a month ago I was told to try a gluten free diet although my blood test were negative, I have close family members who have Celiac


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burdee Enthusiast

Hi I am 46 years old, was diagnosed hypothyroid 5 years ago after 3 years of unexplained weight gain, hair loss and exhaustion, etc... last year I was diagnosed with Hashimoto's Disease and about a month ago I was told to try a gluten free diet although my blood test were negative, I have close family members who have Celiac

T.H. Community Regular

My body's a bit crazy - but had a lot of pain and other issues that sound somewhat similar. I just answered another thread about what happened in my case, in case it helps, and I'll just link to that! :)

Good luck - I hope that someone here has the answers that match your need so you can start to feel better!

Skylark Collaborator

Not everyone does well on only Synthroid. Has your endocrinologist looked at your free T3 and reverse T3? You may need cytomel to get rid of your hypothyroid symptoms if you've been a month on Synthroid and your TSH is properly suppressed.

Sharon326 Newbie

Thanks everyone. I have been away for a few days and am finally getting a chance to check back in. I appreciate that you took the time to respond.

I think there may be somethimg to the Vitamin D overdose thing. So I think I will cut back.

I'm also thinking of seeing an allergist to see if there might be something else making me feel so badly.

As for my Thyroid,I think I've tried every Thyroid med on the planet...although my levels are in the "good range" I have never felt any relief nor lost any of the wieght I gained. I can always tell when my anit-bodies are on the attack as I get severe anxiety and gain a little more wieght...My endo does want me to go back onto the Cytomel. I didn't like the way it made me feel the last time I tried it. I became very nervous, I get that way on Armor Thyroid as well...I think I will go back on Cytomel to see if I can tolerate it better.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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