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Uh Oh! Dairy Intolerance?

lischro

By lischro
in Coping with Celiac Disease

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lischro Apprentice
lischro
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

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Skylark Collaborator
Skylark
Posted

There are two things you can react to in dairy, lactose and the milk proteins. Lactose intolerance gives you the D because undigested lactose passes through your intestine carrying lots of water with it. If you have bacteria that digest the lactose you'll also get bloated and gassy.

The protein reaction is allergy or intolerance, and allergies can cause sore throats. Also fast D is sometimes allergic. In gluten-sensitive folks the problem tends to be cross-reaction to casein, the major milk protein. It's also possible to be allergic to whey.

precious831 Contributor
precious831
Posted

From reading many posts on this site I have become a little more educated on the possibilities of gluten and dairy intolerance.

I never, ever thought I was dairy intolerant, but just ate ice cream (gluten free) and about 20 minutes later had "D" (which could finally be my miralax working...) but also got a horrible sore throat.

I've suffered from chronic constipation for about 3 years and have read on here that many of you who have also had constipation say that it can be due to dairy....

Also, I've been gluten free for 4 weeks....

So what are the other symptoms? Anyone think this sore throat has anything to do with it?

Oh- and are they the same thing?? lactose/dairy intolerance? (Sorry if that's a dumb question!!)

I don't know if you saw my post about dairy but I am beginning to think I'm allergic and not intolerant. I've tried lactose-free and I have the same symptoms, I think I'm reacting to casein and whey. Over a week ago I ate some goat cheese and had severe diarrhea with lots of blood and clots. I still feel sick nearly 10 days later. Severe heartburn, sore throats, coughing, etc. Just crappy feeling, stomachaches.

I hope you figure it out. No more dairy for me. It's been months since I had a sliver to try and I wanted to see if I've gotten better but nope.

Goodluck.

julandjo Explorer
julandjo
Posted

The protein reaction is allergy or intolerance,

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

vbecton Explorer
vbecton
Posted

Question: I read here that a lot of people are able to have some or all dairy back after a period of healing on the diet. Does this go only for those with lactose intolerance? Or is it possible, even with a verrry sensitive casein intolerance? I know mine is casein because I had a horrible reaction to a capsule prescribed to me by my doctor. The only questionable ingredient was indeed casein. :angry: So, any insight as to whether I should hold out hope of ever getting my beloved dairy back? ;) FWIW, my skin allergy test for dairy was negative.

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

Skylark Collaborator
Skylark
Posted

I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them.

I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can't tolerate whey or casein. *tears*

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

julandjo Explorer
julandjo
Posted

There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated but it would explain why I went from being soy, dairy, and shellfish intolerant to being able to eat anything but gluten in about none months of healing.

Skylark I'm sending you a great big 'ol hug. THANK YOU. :lol:

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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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