Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gluten/body Aches...

tweeks2010

By tweeks2010
in Coping with Celiac Disease

Recommended Posts

tweeks2010 Apprentice
tweeks2010
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Gluten will flare both my fibro and my arthritis. When you are in the bakery you are breathing it in and it is getting into your system that way. Can you get shifts somewhere other than the bakery? Celiac is covered under the ADA so if you are diagnosed you do have the right to request that you not be ordered to work in the bakery. I wouldn't make a stink about it but just tell the managers about the problem and see if they will find a way you can work those shifts in a different dept. Hopefully they will be understanding.

brendab Contributor
brendab
Posted

Wow, I never thought about that before!

What you describe is what I get when I am PG and it's horribly painful, like somebody put a blanket of pain over me and it washes in waves. Is this what you are describing? It makes me wonder if my gluten intolerance gave me worse symptoms while PG? I think I ought to make a new thread LOL I don't want to hijack yours :)

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

If your doc says your celiac you have a diagnosis. I was really surprised when my fibro and so many other things went away after I had been gluten free for a few months. I never thought everything was connected to the extent that it was. I hope your pain goes away for good also.

Aphreal Contributor
Aphreal
Posted

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

I just had to say that we have the same name...LOL..my hip does the same thing too. Now that I think of it...I went gluten free...then started working in a bakery then all of my joints go out all the time and are aching...neck is ALWAYS tight...ect. It has actually been getting worse in the last few weeks. Hmm...lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


precious831 Contributor
precious831
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

I have fibromyalgia and also arthritis and it flares up when I'm glutened(among other things. When I feel glutened I feel like a truck just run me over, almost like I have the flu. Achy joints, back pain,neck pain, just pain all over. My joints also swell.

I hope you can find some relief.

precious831 Contributor
precious831
Posted

Btw I forgot to say, my GI doctor said that fibromyalgia, interstitial cystitis(this is not UTI) and celiac usually go together. I have all three unfortunately. They flare up when I get glutened.

SueQueBlue Newbie
SueQueBlue
Posted

I have all 3 as well. I also was dx'd with Irritable Bowel, but I am hoping that is really just Celiac, and the IBS goes away. Actually I would like all of it to go away, and for the Celiac to be tamed, but I'm a newbie, so I don't know what will happen as time goes by.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    4. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
    5. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...