Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Old Were You When You Were Diagnosed?


SaraKat

Recommended Posts

SaraKat Contributor

I got the positive blood test last week and I am having the endoscopy next week and I am flipping out about the intestinal damage I may have been doing all these years. I am 35 and have been eating gluten all these years. I love cereals, chips, etc. I am so nervous!

How old were you when you were diagnosed?

My main symptom is left sided rib cage pain and I've always have mild gas- I always thought it was when I ate junk food. I am hoping the left sided pain is from the celiac. I just want to get the final dx and start the diet to see if I feel better.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Don't worry. It heals. I didn't figure out I was gluten intolerant/celiac until my late 30s. We just have to catch up on calcium with lots of weight-bearing exercise, supplements, and calcium-rich foods. :)

mama3122006 Newbie

I got the positive blood test last week and I am having the endoscopy next week and I am flipping out about the intestinal damage I may have been doing all these years. I am 35 and have been eating gluten all these years. I love cereals, chips, etc. I am so nervous!

How old were you when you were diagnosed?

My main symptom is left sided rib cage pain and I've always have mild gas- I always thought it was when I ate junk food. I am hoping the left sided pain is from the celiac. I just want to get the final dx and start the diet to see if I feel better.

Thanks!

I was diagnosed at 21, but I had been having the same side rib cage pain you described since I was about 17. I was originally diagnosed with acid reflux disease, until they found an abnormality during my 2nd upper endoscopy and did a biopsy. They then sent me for blood testing to further confirm the diagnosis. The real kicker was that I was a vegetarian at the time, and I worked at Subway for years!

SaraKat Contributor

Thanks! Speaking of calcium, I found a blood test I had done in April 2010 (before my celiac positive blood test) and my calcium, B12, and D were all in the normal range. My iron and ferritin were low though. Do you know if that has any indication about the condition of the intestines? I must have been absorbing some nutrients for them to be normal. All my liver levels were normal also.

Roda Rising Star

I was 35 when I was diagnosed and it will be two years this Sept.

jerseyangel Proficient

I was diagnosed 5 years ago at the age of 49.

I've had 2 endoscopys since, and no damage was found on either. I am highly sensitive to cross contamination, and have several other food intolerances and chemical sensitivities that showed up after going gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    2. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    4. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...