Gluten Free Still Taking Dapsone

[bailey1]

I have had DH for the last 4 years and have been taking dapsone two weeks ago I was told that I have celiac and I have been gluten free for the last two weeks. My question is how long after going gluten free do you stop taking dapsone. I have had some bad side affect of going gluten free my whole body cramps up (it is like haveing a seizure) and I feel so weak after the attacks.

[lovegrov]

My DH went away immediately but that's unusual. It can take several months. And as far as I know, the only way to tell is to stop taking dapsone. You might also want to avoid sources of major amounts of iodine -- iodized alt and shellfish -- for a while.

richard

[rdunbar]

I am wondering how long you have known you have specifically dermatitas herpetiformis (DH)?, and how long have you been on dapsone?

I'm asking because DH is Celiac 100% of the time, so if you were somehow diagnosed w/ DH and not simultaneously w/ Celiac then someone really dropped the ball with your diagnosis. if they prescribed you dapsone and did'nt tell you that you have Celiac, that would be ridiculousy irresponsible or incompetent of them.

I don't want to presume, but from your post it's hard to tell.

I've had DH for years and have been on a strict elimination diet of only unpackaged/unprocessed foods for @ 5 months, and have seen some improvement w/ the DH, but not tons, actually it was better a few months ago.

with other 'symptoms' i've had radical improvement within weeks of going strictly gluten/casien free, but i've heard it can take 2 years for DH to go away.("Celiac, the Hidden Epidemic" dr. P Green)

Also, i've never used dapsone, so i don't know about that.