Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Got Glutened For The First Time


Emilushka

Recommended Posts

Emilushka Contributor

I've only been diagnosed for a couple weeks, but I was really doing a lot better. Then all of a sudden last night I had the familiar feeling of bloating and nausea - I got glutened. I have no idea what got me because I checked all ingredients. I'm assuming at this point that it was cross-contamination because I ate some corn chips at a friend's house, and it was after that that I started to feel ill.

It's so frustrating! I was doing so well, and then there I was again: back to feeling awful and being kept up late at night.

How do you eat at other people's houses without getting glutened? Is it even possible?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

Oh, I am so sorry you got glutened! It is a big wake up call. I have been gluten-free for 5 months and have been glutened 2 times. The first time I had family from out of town staying over and I had made them a key lime pie (not gluten free - mistake number one). After they left there was an entire pie left over. I proceeded to eat a huge piece and as soon as the last bite hit my tongue, my brain kicked in with a big "uh oh"! :blink: How stupid was that? Well, it was a learning experience. I don't get sick with being glutened, just a bit of heartburn, but still - so frustrating. The other time was an accident at a restaurant.

When I go to friend's houses and there are snacks I usually don't eat anything unless I bring it, and even then I will be very careful. People will pick up a slice of bread or a Wheat Thin and then grab some corn chips and bam! Cross contamination! Serving utensils would cut down a lot of this, but even then, it could happen. I recommend going already full and if you need to socially snack, bring a small bag of chips or whatever, dump them on your plate quietly and continue to have fun with your friends. Same with beer - bring your own. The host isn't going to mind - it's all about getting together and having fun. If you are constantly on alert you aren't going to have fun.

It does get easier! :)

srall Contributor

After I went gluten free, I started getting sick from corn. In fact, my reactions to corn and corn flour were almost worse than the gluten.

I agree with above poster about bringing your own snacks. It's the safest way to go.

Emilushka Contributor

Thanks, guys. I really have no idea where the contamination CAME from, which is why I thought it was OK to eat the chips. But I think you guys are right. I'll just make sure I bring food from home or am full before arriving at the friend's house.

You know, I don't mind the discomfort anymore. I don't like it and I'll stay gluten-free to not have it, but now that I understand what it is it's not so bad. I can get through that part. What kills me is that I was kept from sleep because I felt so bad - I hate losing sleep to Celiac! I used to just not eat anything at all past 7 PM before I was diagnosed because at least if I gave myself 3+ hours before bed, I'd feel OK enough by bedtime to be able to sleep. Last night I ate those corn chips at around 10 PM.

So I am kicking myself for this. I didn't realize I'd be so sensitive to cross-contamination so soon ...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - akebog posted a topic in Gluten-Free Restaurants
      0

      Fusilli Pizzeria, Miller Place, NY

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    5. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • akebog
      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
×
×
  • Create New...