Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Blood Test Done Today

wow89

Recommended Posts

wow89 Rookie
wow89
Posted

I got a celiac panel done today, food allergies, along with thryoid and glucose. Pleased with new dr. she leaned more toward thyroid, but thought I was on the right track wiht the celiac... since I glutened this weekend my heart keeps "popping" I guess that's a palpitation ;) and feeling fuzzy/out of focus and weak.

If it's not gluten then I don't know what the heck is wrong... feeling frustrated. IF it is gluten it means I've had this for about 20 years, cause that's when it ALL (tummy troubles) started.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Wow89, have you been gluten free for a while? If you have then i'm sorry to say that you have a very good chance of the blood tests coming back negative. I hope you get the answers you need.

Link to comment
Share on other sites
wow89 Rookie
wow89
  • Author
Posted

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the info - stopped for 2/3 weeks - I tried to eat some this weekend.. told the dr about the lapse, even it says I am little I'm done with it as bad as I feel so as long as it's a 'little positive' that works for me. ;) If not, hormone issues it is! ;)

Please don't assume that if the test is negative that it isn't celaic. My doctors doing so cost me many, many painful years. When you are done with testing no matter what the results do give the diet a good strict trial.

Link to comment
Share on other sites
wow89 Rookie
wow89
  • Author
Posted

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Link to comment
Share on other sites
wow89 Rookie
wow89
  • Author
Posted

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

Also just wondering... I can be sitting and doing nothing and then my body just kind of has a mind of it's own I start feeling anxious or my heart jumps or palpitates... is that a celiac thing or just my stress over waiting to hear something? ;)

Also, how long before you are back to normal ie - like you were before it all started?

I had that when I was severly anemic. I think because the blood can't carry enough oxygen so your heart tries to pump more. Have you been checked for iron, ferritin, B12, D?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the advice - yes I am going to go gluten free, as because Sat and Sun I ate gluten, Tuesday a.m. I have D. It just makes sense. I have low B12 and am otherwise quite healthy despite my weakness, fatigue, palpitations, jitteryness, hair loss, ridges in fingernails and anxiety. These symptons REALLY majorly appear after I have had some sort of tummy virus or am sick, but the D remains a constant and tends to also appear around my time of the month. It could be hormonal too but it's gotta be the gluten.

question is there one symptom that all celiacs have or is it just that varied?

Symptoms can really vary a lot. I also had a worsening in symptoms around the time of my periods, well until celiac put me in early menapause. The delayed D is fairly common for us. Also what you think are tummy viruses may actually be celiac symptoms. I am glad to hear you are going to give the diet a good strict try. I hope you have quick results, and you may with the D, but some of the other stuff may take longer to resolve. Do get your iron, ferritin and vitamin levels checked also.

Link to comment
Share on other sites
wow89 Rookie
wow89
  • Author
Posted

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks - yes I do have low b12 I know for sure... am getting other levels checks. Thansk for all your help!

You should make sure you are taking the sublingual form of B12 supplements as you may not absorb the pills you swallow until you are fully healed.

Link to comment
Share on other sites
annabella Newbie
annabella
Posted

I had a blood test on Wednesday, but am also told that it could be negative as I've been gluten-free for a few weeks now. Did you get your results yet?

Link to comment
Share on other sites
wow89 Rookie
wow89
  • Author
Posted

Anabella - no test results yet? How about you? Waiting waiting waiting... It's just gotta be the gluten too much makes sense now!

I've been gluten free for a few days and am feeling lots better. My vitamin had wheat in it, changed to a sublingual B12 and and feeling better in all those aspects too. I used to also get sick after cleaning house, always thought it was because my hubby was germy - now I read cleaners have gluten.. could it be?

If it is positive I could have had this for 10-15 years!!! or more, I remember being constipated as a child a lot... is that a memory lots of kids have??? ;)

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Will taking B12 and eating lots of eggs skew an anemia/b12 test?

So does all vitamin E mean what? I have a "holy grail" foundation I'm using and I really don't want to give it up :) (but I would) ;)

Yes taking B12 will skew the results and so will taking folate as it can give a reading that is higher than it really is for the B12. I don't think the eggs will. Just tell your doctor what supplements you are taking before the doctor tests your levels.

Not all vit E is wheat derived some is soy derived and there are other sources.

The best way to find out about the foundation's source is to call the company and ask. Not all of us would be concerned about the source in foundation. As long as it doesn't contact any mucous membranes in your eyes, nose or mouth and you wash your hands well it might be okay. If in doubt use something else until you feel better and then see if starting up with it again causes any issues.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,079
    • Most Online (within 30 mins)
      7,748
    Martyg24
    Newest Member
    Martyg24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By trents · Posted

      Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest source at any given time. I take it you are a pretty sensitive celiac.
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      The regular cheddar and sour cream Ruffles have yeast extract, which is probably the source of gluten.  Pinpointing the exact cause of gluten exposure is always tricky, but I've come to learn my initial reaction to gluten compared to the ongoing symptoms that will occur days, weeks, and sometimes months later.  
    • plumbago
      Finding out I’m coeliac whilst pregnant

      By plumbago · Posted

      Yes, that's probably best. (Honestly, that is an extraordinarily high number, I've never seen anything like that. I repeated my blood tests (not taken while pregnant BTW); before giving up cake, pizza, and beer, I wanted to know for sure! You don't wanna mess around with anything while pregnant. Congratulations and best of luck!
    • trents
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By trents · Posted

      Here are the ingredients listed for the regular sour cream and cheddar Ruffles: Potatoes, Vegetable Oil (Canola, Corn, Soybean, and/or Sunflower Oil), Maltodextrin (Made from Corn), Salt, Whey, Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Onion Powder, Monosodium Glutamate, Natural and Artificial Flavors, Buttermilk, Sour Cream (Cultured Cream, Skim Milk), Lactose, Butter (Cream, Salt), Sodium Caseinate, Yeast Extract, Citric Acid, Skim Milk, Blue Cheese (Milk, Cheese Cultures, Salt, Enzymes), Lactic Acid, Garlic Powder, Artificial Color (Yellow 6, Yellow 5), Whey Protein Isolate, and Milk Protein Concentrate. CONTAINS MILK INGREDIENTS. Here are the ingredients listed for the baked ones: INGREDIENTS: DRIED POTATOES, CORN STARCH, CORN OIL, SUGAR, MALTODEXTRIN (MADE FROM CORN), SALT, SOY LECITHIN, DEXTROSE, WHEY, WHEY PROTEIN CONCENTRATE, ONION POWDER, CHEDDAR CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), MONOSODIUM GLUTAMATE, BLUE CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), CITRIC ACID, ARTIFICIAL COLOR (YELLOW 6 LAKE, YELLOW 5 LAKE, YELLOW 5, YELLOW 6), SKIM MILK, NATURAL AND ARTIFICIAL FLAVORS, GARLIC POWDER, LACTIC ACID, DISODIUM INOSINATE, AND DISODIUM GUANYLATE. CONTAINS MILK AND SOY INGREDIENTS   They look a lot the same except for the baked product contains soy. What do you suppose is the hidden source of gluten in the regular Ruffles that is not found in the baked ones? Could you be mistaken in attributing your reaction to the Ruffles? Could it have been from gluten in something else you ate around the same time or even a non-gluten tummy event?
    • Katiec123
      Finding out I’m coeliac whilst pregnant

      By Katiec123 · Posted

      @plumbago on my blood tests I got 4500 and normal should be between 25-30 but they wanted me to continue eating gluten until a endoscopy was done and also biopsies taken. I’ve took it upon myself to cut gluten out today based on the research I’ve done about it during pregnancy 
×
×
  • Create New...