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Everything posted by txplowgirl

  1. Hi everyone, well, I guess i'm back with my tail between my legs. I left back several years ago because of several problems. Mainly I quit working because I got really sick. I nearly died. I was hospitalized with Systemic Lupus Erythematosus. I already had Fibromyalgia. Anyway, the lupus was attacking my kidneys and dr. told me I needed to go on disability. That I was so sick I wouldn't be able to work again. She was so right. Some of you may remember me. I drove truck and sometimes panned for gold in my off time. I turned out to be super sensitive to gluten. During my truck driving days I managed to lose 70 lbs and felt a lot better. Some of my issues resolved and I felt a lot better. When I found out the Lupus was incurable and I had to go on disability I went into a deep depression and I went back to eating everything in my path. Fast forward 4 years now and I have gained most of the weight I lost back, I have systemic Lupus, Fibro, Connective Tissue Disease, Rhuematoid Arthritis, Chronic Fatigue syndrome, Lupus Nephritis, Raynauds, Chronic Anemia, High blood pressure, Degenerative Disc Disease, Depression, 2 bulging discs in my neck with bone spur and 2 bulging discs in my lower lumbar, my social Anxiety is back, my IBS is worse, 5 months ago I wound up being rushed into emergency surgery for an 11 lb cancerous ovarian tumor that had ruptured, had a complete hysterectomy as well as an appendectomy. Thankfully all biopsies were negative for cancer so I didn't need chemo or radiation, thank goodness. The day before Thanksgiving I was diagnosed with Hashimoto's disease, my immune system is attacking my thyroid. Reading up about it from what I can understand a gluten free diet will help. The last few months i've been thinking of going back to gluten free but I just haven't really had the motivation. But with this latest diagnosis I decided I better whether I like it or not. I will be sharing my home with 2 gluten eaters who refuse to go gluten free which will make it even rougher, my husband, I got remarried 3 years ago and my only son has been living with us for the last 4 years also. So, Anyway, i'm back and trying to remember what I had learned before. So, here's hoping the new year is a lot better.
  2. txplowgirl

    I'm back After Being Gone For Awhile

    Back in 2012, I had an endoscopy and they found slight villi blunting as well as severe chronic gastritis. Gastro dr told me he didn't think I had Celiac but in his mind I had a sensitivity at least and suggested I go gluten free. But I had just beeb diagnosed with the Lupus which I was told was incurable, so that just took over and I went downhill in the depression dept. The ovarian cancer woke me up and i'm getting back on the bandwagon. I won't eat any gluten free store foods, they make me sick so I will do what I did before. I'm going back to a whole foods diet and kick out the nightshades, soy, dairy, and there were a few other things that I was having reactions to but can't remember what they are. I know i'll find out a few weeks down the road. It shouldn't be as rough this time as I know what i'm doing where I didn't before. Looking forward to feeling better and losing this weight that I gained back. Hopefully by the end of this new year i'll be feeling a lot better and have lost a lot a weight, knock on wood.
  3. txplowgirl

    I'm back After Being Gone For Awhile

    Hi Notme, I no longer drive truck, wish I could. I intend to go back to gluten free. I have been thinking about it for several months and I just needed something to give me the motivation to do it. The diagnosis, of Hashimoto's Thyroiditis the day before Thanksgiving did it. I wanted to wait until after the holidays and tommorrow is the first of the new year and eating differently.
  4. I am supposed to have a check up in another 2 weeks to see how it's working. Dr. started me on a low dose of 25, then she will up to 75 and so on. Thanks for that link StephanieL, I will definitely check that out. And Molly, yes, I am lactose intolerant so that may explain it. Thanks everyone.
  5. I was put on Levothyroxin around Thanksgiving due to finding out I have Hashimoto's Thyroiditis. I read somewhere that Levo has gluten in it. Does anyone know if that's correct. I have actually felt worse ever since taking it.
  6. txplowgirl

    I'm back After Being Gone For Awhile

    Thanks Peter, appreciate it. I hope so.
  7. Hi everyone, I use to be on here almost everday for a long time but the crazyness of not knowing if I had Celiac or not and my SO not believing it I went back to eating gluten after being gluten free for several years, loosing weight and feeling lots better. Well, since I been here I went back to being sick, gained back all the weight I had lost and have been dx'd with Lupus/Conective Tissue Disease, with Fibro type symptoms, Chronic Fatigue Syndrome, Rynauds Syndrome, Degenerative Disc Disease, Endometriosis, Chronic Anemia and the really big one Severe Erosive Gastritis. Here a while back I kept getting sicker and sicker and I wound up in the hospital with a Lupus/Connective Tissue Disease flare and I had lost so much blood that I wound up needing a blood transfusion. While I was in they wanted to track down the bleeding so my dr contacted the hospitals gastro dr and he came in to talk with me and since he was going to do a Endo and Colonosopy on me I asked him to take enough biopsies to check for Celiac disease. I told him that I definetly had symptoms of when I ate gluten but that none of the blood tests showed I had it, So he said he would check. Well, this is what my official paperwork says. Gastric Antral Biopsies: Superficial fragments of gastric antral mucosa with severe hemorragic erosive gastritis and vascular congestion. Negative for tumor, Immunohistochemical stain for Helicobater negative. Several biopsies taken shows villi has slight blunting which is indicative of mild gluten sensitivity. That's it. So, for the old timers here. SHould I consider this Celiac Disease? When I talked to the gastro dr he was like the villi wasn't destroyed so I don't consider you to have Ciliac. But until you get your gastritis under control I would avoid gluten if I were you. Arrggghhh! Just frustrating but I guess I need to be gluten free no matter who gives me crap about it. Guess I need to redo my signature post down below.
  8. Grrr, Kareng, That just kind irritated me just a bit more. The first 1 seemed to go a good way towards being Celiac and the second just blew it out of the water because it could be something else. But the 1 thing that sticks out is my immune system. Lupus, Connective Tissue Disease, Rynauds and other stems from immune problems plus gastro problems. Geeze Louise, I need to be gluten-free but it's gotten to be such a darn hassle plus my depression dosen't help matters as well as stressors on top of everything. But do appreciate the help Karen. Thank you.
  9. My Neuro diagnosed me after she checked to make sure I don't have Epilepsy and MS. She checked me for almost everything else.But it is Lupus for sure. But she said something that i'm confused about. She said I had a low positive ANA. I'm going tomorrow to get my paperwork. I am so Chronically anemic I need a transfusion. I cant get the transfusion until I have an Ablation procedure because I have been doing some heavy bleeding. I have endometriosis. Anyway in the next couple of weeks it's gonna be busy and tiring. These are the results I have so far. Anybody have any info about these? Test level Normal Level Hemocrit, Blood 26.8 35-60 Hemoglobin 8.2 11-18 Ethrocytes 3.90 4.00-6.00 Mean Corpuscular Volume 68.8 80-99.9 Mean Corpuscular Hemoglobin, RBC 21.1 27-31 Protien, Total Serum 6.3 6.4-8.9 Albumin, Serum 3.9 3.5-5.7 Alanine AminoTransferase Serum 9 U/L 7-52
  10. Hi Kristen, I have had Chronic anemia all my life and I have been taking 325 mgs of iron 3 times a day and told to eat liver every night but I kept getting worse and worse. Finally went to a Nuerologist and she said I have Lupus on top of needing a blood transfusion. My GP Doc didn't think I needed anything else done because it was chronic. But I cant get the transfusion until I have my Ablation procedure on Thursday because of Endometriosis, heavy bleeding. My going gluten-free only helped for a little while, like a year before I started going down hill again. You've only found out 2 weeks ago. It will take a little while to start feeling better. Try to be as strict as you can, for some it can take just a couple of weeks for some they didn't start feeling better until a year in. It took me 6 months before I started feeling better. Not to mention you may go through withdrawals which will make you feel worse.
  11. txplowgirl

    Brief Depression

    Not just gluten but soy and dairy also causes me to have depression anywhere from 12 to 48 hours.
  12. It could be withdrawal or it could be an intolerance. A lot of secondary intolerances pop up when going gluten free. Dairy causes my sinus's to act up so bad my sinus's swell as well as the roof of my mouth swells and blisters pop up. When that happens I usually have about a week and a half of pure heck.
  13. I have a cousin who has a son who has all the signs of Celiac and is so allergic to MSG he has to carry an epipen with him. H'e like 12 now, and she would rather him have his epipen than try to avoid MSG let alone gluten.
  14. I ordered the nutribullet here a couple of evenings ago. Just wondering if anybody has tried it?
  15. I have never been able to drink coffee. Always made me sick to my stomach, headaches and put me to sleep even the smell would nauseate me. What was interesting is cigarettes did the same thing. Found out a few years ago it was due to the tannins in the coffee and cigs. Didn't like the taste of cigs or coffee anyway so no biggie.
  16. Justaguy, I'm sorry to say but some people don't see an improvement until about 3 months in and for others not until a year or more. All you can do is just give it time and try not to rush.
  17. txplowgirl

    Has Anyone Tried The Nutribullet?

    Thanks for that Kareng, but that dosen't quite help. Arrrgghh! I've been trying to find more info. Oh well, i'll just have to wait and see and i'll let everyone know how well it works for me.
  18. Ex pres Bill Clinton and his daughter Chelsea. They seem to be embarassed about it though. Chelsea's wedding cake was gluten free when she got married.
  19. txplowgirl


    Just because it says gluten free dosen't mean it is. It still has trace gluten in it. Under 5 PPM. You may be supersensitive and reacting to that trace of it.
  20. Hidy everbody, Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i' m having some issues and i'm alittle ashamed because I knew better. Oh man, lets see if I can get all yall up to speed. Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol 3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that. Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next. Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else. So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support. To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this. Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? So, how's everyone doing?
  21. txplowgirl

    Back After Being Gone A While

    Thanks everyone for the welcomes. I appreciate it. Yes, I ate for gluten a good 2 months before the bloodtests. 2 cheeseburgers a day for 2 months plus Macaronie and cheese. The more gluteny the better and it didn't work. Just felt like crap and visiting the bathroom a lot. And no, it wasn't a gluten free cake, but knowing how I would react I restricted the gluten stuff a couple days before and for the big day so wouldn't have a problem. Anyway, back here to do the research again and get back on the bandwagon so to speak. It'll be easier to do this time I hope because I know to expect the withdrawals and cravings and everything that goes with it. I've been spending a lot of my time the last year on a preparedness site. Getting prepared to try to live through an economical colapse, or even maybe the grid going down. Very interesting people. Anyway good to be back and looking forward to a better life. So tired of feeling like crap. Hopefully, once i get my inner self working again my back and Fibro will settle down some also.
  22. I thought that this info might be of use to someone who has been having other issues that they can't quite pinpoint. The nightshades will make me sick from joint and muscle pain to nausea and vomiting. Read the section on what it can do to the nervous system. I bet that will surprise you. What are nightshades and in which foods are they found? Overview - the basics about nightshade foods Potatoes, tomatoes, sweet and hot peppers, eggplant, tomatillos, tamarios, pepinos, pimentos, paprika, cayenne, and Tabasco sauce are classified as nightshade foods. A particular group of substances in these foods, called alkaloids, can impact nerve-muscle function and digestive function in animals and humans, and may also be able to compromise joint function. Because the amount of alkaloids is very low in nightshade foods when compared with other nightshade plants, health problems from nightshade foods may only occur in individuals who are especially sensitive to these alkaloid substances. Since cooking only lowers alkaloid content of nightshade foods by about 40-50%, highly sensitive individuals may want to avoid this category of food altogether, while non-sensitive individuals may be able to eat these foods, especially in cooked form, without problem. Green and sprouted spots on potatoes usually reflect high alkaloid content, even though the green itself involves the presence of chlorophyll, not alkaloids. For this reason, sprouted areas should always be thoroughly removed before potato cooking, or the potatoes should be discarded altogether. Nightshades - a description Nightshades are a diverse group of foods, herbs, shrubs, and trees that have fascinated scientists, doctors, and nutritionists for centuries. "Nightshade" is actually the common name used to describe over 2,800 species of plants, many with very different properties and constituents. All of the plants, however, belong to a scientific order called Polemoniales, and to a scientific family called Solanaceae. To give you an idea of the diversity associated with this group of plants, consider the fact that tobacco, morning glory, potato, and tomato are all classified as nightshades. Pharmaceutical nightshades Nightshades are actually more famous as drugs than as foods. The best-known nightshades when it comes to pharmacy include mandrake (Mandragora officinum), tobacco (Nicotiana tabacum) and belladonna, also called deadly nightshade (Atropa belladonna). What has interested scientists most about nightshades in a pharmacological sense is a group of compounds in them called alkaloids. The alkaloids found in nightshades are not only the basis for consideration of nightshades as drugs, but also for understanding adverse reactions to nightshades when they are eaten as food. Adverse reactions to nightshade alkaloids are discussed further in the health effects section of this nightshade profile. Foods considered to be nightshades Nightshade vegetables and fruit The most famous food members of the nightshade family include potatoes (Solanum tuberosum), tomatoes (Lycopersicon esculentum), many species of sweet and hot peppers (all species of Capsicum, including Capsicum annum), and eggplant (Solanum melongena). Less well know, but equally genuine nightshade foods include ground cherries (all species of Physalis), tomatillos (Physallis ixocapra), garden huckleberry (Solanum melanocerasum), tamarillos (Cyphomandra betacea), pepinos (Solanum muricatum), and naranjillas (Solanum quitoense). Pimentos (also called pimientos) belong to the nightshade family, and usually come from the pepper plant Capsicum annum. Pimento cheese and pimento-stuffed olives are therefore examples of foods that should be classified as containing nightshade components. Although the sweet potato, whose scientific name is Ipomoea batatas, belongs to the same plant order as the nightshades (Polemoniales), it does not belong to the Solanaceae family found in this order, but to a different plant family called Convolvulaceae. Nightshade spices The seasoning paprika is also derived from Capsicum annum, the common red pepper, and the seasoning cayenne comes from another nightshade, Capsicum frutenscens. Tabasco sauce, which contains large amounts of Capsicum annum, should also be considered as a nightshade food. It may be helpful to note here that black pepper, which belongs to the Piperaceae family, is not a member of the nightshade foods. Ways in which nightshades may affect health Alkaloids - The chemistry of nightshades Most of the health research on nightshades has focused on a special group of substances found in all nightshades called alkaloids. In chemical terms, alkaloids are easy to identify because they all have at least one ring-like structure that contains the element nitrogen. Plants produce alkaloids as a regular part of their biochemical activity, and these alkaloids are primarily designed to help protect the plants from insects that would otherwise eat them. Four basic types of alkaloids are found in nightshade plants. These types are: (1) the steroid alkaloids, which contain a fairly complicated fused ring structure and are found in most food nightshades including potato and tomato; (to compare the value of one of the most notable steroid alkaloid -solanine-in the foods in which it is most concentrated, please refer to Table 1)(2) the tropane alkaloids, all originating from the simple amino acid ornithine and found in fewer of the overall nightshades, but more extensively researched due to their strong drug-like properties; (3) the pyrrolizidine alkaloid and (4) the indole alkaloids, both important groups from a drug standpoint. Table 1 Vegetable Solanine contentmilligrams per 100 gram serving Common peppers 7.7-9.2 Eggplant 6.1-11.33 Potatoes 2-13 Effect of steroid alkaloids on the nervous system The steroid alkaloids in potato - primarily solanine and chaonine - have been studied for their health effects in two areas. First is their ability to block activity of an enzyme in nerve cells called cholintesterase. Many of the alkaloids found in nightshades possess this kind of activity, called cholinesterase inhibition. If the activity of cholinesterase is too strongly blocked, the nervous system control of muscle movement becomes disrupted, and muscle twitching, trembling, paralyzed breathing, or convulsions can result. The steroid alkaloids found in potato have clearly been shown to block cholinesterase activity, but this block does not usually appear strong enough to produce nerve-muscle disruptions like twitching or trembling. Effect of steroid alkaloids on joint health A second type of problem potentially related to the potato alkaloids involves damage to the joints caused by inflammation and altered mineral status. Whether alkaloids can contribute to joint damage of this kind is not clear from current levels of research. Some researchers have speculated that nightshade alkaloids can contribute to excessive loss of calcium from bone and excessive depositing of calcium in soft tissue. For this reason, these researchers have recommended elimination of nightshade foods from the meal plans of all individuals with osteoarthritis, rheumatoid arthritis, or other joint problems like gout. Effect of nicotine alkaloid on health Just as there is no firm research evidence for the impact of the steroid alkaloids in nightshade foods on the nervous system or joints, there is also no solid research evidence for impact of the more drug-like alkaloids in nightshade foods on body systems. But to the surprise of many people, nightshade foods do contain very small amounts of drug-like alkaloids that have long been fascinating to medical and drug researchers. Consider, for example, the most famous of the one-ring type alkaloids (monocyclic alkaloids) found in the highest concentrations in tobacco (Nicotiana tabacum): nicotine. This alkaloid is found not only in non-food nightshades like tobacco, but also in the food nightshades including eggplant and tomato. But there is one important difference here: while alkaloids like nicotine are definitely found in nightshade foods, the amount involved is dramatically less. Even in the case of eggplant, which is the food nightshade that appears to have the highest nicotine content after tobacco, the amount of nicotine is far lower than the amount found in tobacco. In the case of green tomatoes, which also contain nicotine, the amount is even less. The levels of nicotine in all nightshade foods are so low that most healthcare practitioners have simply ignored the presence of nicotine in these foods as a potential compromising factor in our health. At the World's Healthiest Foods, we both agree and disagree with this conclusion. While we agree that the amount of nicotine in nightshade foods is very, very small, it still seems possible to us that some individuals might be particularly sensitive to the alkaloids found in nightshades, and that even very small amounts might compromise function in the bodies of these individuals. Increased alkaloid content of green and sprouting potatoes It's important to point out that green spots on potatoes, or sprouting on potatoes, usually correspond to an increased alkaloid content, and this increased alkaloid content is one of the main reasons for avoiding consumption of green or sprouted potatoes. (The green color itself is chlorophyll, and helpful to our health, but unfortunately, it's also accompanied by the increased alkaloids that we can't see). Interestingly, in one study conducted with hamsters who were fed the sprouted portions of potatoes, increased alkaloid content did not seem to impact the nerves or joints nearly as much as the digestive system itself. The researchers focused on damage to the stomach and intestines when trying to understand the problems caused by ingestion of potato sprout material, and concluded that there were reasons to avoid this material based on digestive system evidence alone. A bitter taste in potatoes after the potatoes have been cooked is usually a good indication that excessive amounts of alkaloids are present.
  23. Bummer, the dr's office called late this afternoon with all of my results. Celiac negative, Lupus neg, Lyme neg, cortisol fine, thyroid neg. I had 15 different tests and every single one of them negative. All I wound up getting out of it was being put on Paxil and Nueronton for the pain and fatigue of my Fibro and Chronic fatigue. On top of that i've been having problems staying gluten free the last few days. Uugghhhh, it's harder than I thought it would be. I thought I could go right back to being gluten free without any problems but I get cravings so bad and I grab something I shouldn't. I go back to work tomorrow so I can't get the actual results until I get back home in a month. I'll post the results when I get them to see what all of you guys can tell me.
  24. I was gluten free for over 2 and a half years then went back on gluten for tests. I was fine for about 2 weeks then everything started happening. From D to anxiety, stomach pains etc. It takes time for the antibodies to build up in your system and then you start getting sick again. You need to be eating gluten for at least 3 months and the equivelant of 2 to 3 slices of bread a day to Hopefully test positive.
  25. Well i'm 2 months in on my gluten challenge. I'm being tested on the 13th. If I don't have official Celiac, I know i'm at least gluten intolerant and no matter what the tests say i'm back to being gluten free. Almost everything that had resolved has just about come back. The nueropothy pain and tingling in the extremities, insomnia, restless legs, brain fog off an on, alternating D and C, bloating, cramps, the sores that I had on my head for almost 20 something years that went away are back, anxiety, back and shoulder pain, just that general feeling like i'm coming down with something. Alternating between feeling cold and hot in different parts of the body, Running a low grade fever, nausea and the worst of them all having not quite panic attacks but loosing my cool, feeling like i'm loosing my marbles and feeling like bugs are crawling all over my body off and on. I can't hold my temper hardly at all, lashing out for no reason, i'm back to being the snarly witch bi*ch again. Not good. And i'm gaining weight like crazy again. I'm watching what I eat, trying to eat healthy calorie and fat wise but i've already gained back 12 lbs. Very frustrating. I'm so looking forward to the 13th. Then I will be gluten free forever! Yaaaaa!