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Ok, I'm Getting Really Freaked Out!

jeslk

By jeslk
in Coping with Celiac Disease

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jeslk Apprentice
jeslk
Posted

I've been doing a lot of reading on this forum over the past two days, and I'm starting to get really freaked out about getting "glutened.". At first I wasn't worried at all because I don't have any outward symptoms, but now I've come across several posts indicating that even a crumb can cause damage!

I mean, is it really true that coming into contact with just trace amounts can negate all of the other gluten free time I've done? Hearing about reduced life spans and the like - it's really hitting home how much gluten really is a poison for us. I'm actually hoping I do start to show symptoms so that I'll know. Otherwise, my doctor suggested that I need to be even more "borderline paranoid" about coming into contact with gluten.

Plastic bubble, anyone?

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hnybny91 Rookie
hnybny91
Posted

Sadly you do have to be a little paranoid. My DD's birthday was the other day and she wanted grilled cheese sandwiches for her birthday. She is gluten free like me so I grilled hers on the George Foreman grill and then made her boyfriend some mini quesadillas on the same grill. I wiped the grill with a sponge and then made mine with gluten free bread. I got glutened because I did not thoroughly wash the grill pan after boyfriends :(

Fire Fairy Enthusiast
Fire Fairy
Posted

I got glutenated from a scratched no-stick skillet. And I got glutenated from invisible crumbs in grape jelly. :( You see since I live with gluten eaters I didn't toss the old jelly I just bought new, unfortunately the jellys got switched round. I also think I might have gotten sick from ingesting some nail polish. I had some polish that literally wore off over a day. And I now know my top coat had gluten in it. :(

To quote Alister Mad Eye Moody (Harry Potter) "Constant Vigilance." (I might have to make that quote part of my signature. :))

jeslk Apprentice
jeslk
Posted
  • Author

Wow, it really is crazy, huh? So I guess what I don't understand is whether or not gluten is effecting me the same way, even if I don't get the outward reaction . . . I keep get g mixed messages, since I see some people saying that you have to figure out what your tolerance is.

Is there such a thing as gluten tolerance for someone with celiac?

Lori2 Contributor
Lori2
Posted

I'm actually hoping I do start to show symptoms so that I'll know. Otherwise, my doctor suggested that I need to be even more "borderline paranoid" about coming into contact with gluten.

Actually, aren't you showing symptoms? Your signature says you have been diagnosed with non-Hodgkin's lymphoma and thyroid cancer. According to Dr. Green (Columbia Celiac Center) in his book, Celiac Disease A Hidden Epidemic, he states that thyroid cancer is 22 times more prevelant in a celiac than in the general population. Non-Hodgkin's lymphoma is 9 times more prevelant. Somehow, I guess my diarrhea, gas and cramps aren't too bad after all.

jeslk Apprentice
jeslk
Posted
  • Author

Actually, aren't you showing symptoms? Your signature says you have been diagnosed with non-Hodgkin's lymphoma and thyroid cancer. According to Dr. Green (Columbia Celiac Center) in his book, Celiac Disease A Hidden Epidemic, he states that thyroid cancer is 22 times more prevelant in a celiac than in the general population. Non-Hodgkin's lymphoma is 9 times more prevelant. Somehow, I guess my diarrhea, gas and cramps aren't too bad after all.

Yes, I meant immediate symptoms of being glutened. It's precisely because of the two cancers that I am concerned I won't know if I'm accidentally ingesting gluten and causing more damage.

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      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
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