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I Think I Have Celiacs Disease Even Though I Tested Negavtie

Minnieexoxoxo

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Minnieexoxoxo Newbie
Minnieexoxoxo
Posted

i think i have celiacs disease even though i tested negative I have all the symptoms the only think i don't have is the rash . Could this be ?

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etta694 Explorer
etta694
Posted

First of all what were the specific tests?

I won't answer but someone will know if you give more info.

eatmeat4good Enthusiast
eatmeat4good
Posted

Yes it very well could be that you have Celiac/Gluten Intolerance even if you test negative. Unfortunately, the tests all have a significant false negative rate. Celiac is the only thing they can test for, but Gluten Intolerance is just as serious. Many people here are self-diagnosed for that very reason.

If you suspect it but test negative, the next thing to do is to try the gluten free diet. I didn't ever have to challenge gluten because every time I made a mistake and got a little cross contamination, gluten got me. Symptoms returned with a vengeance for days. Keep reading here and give the gluten free diet a good trial.

You will then know very soon if this is your problems. The tests are only partially accurate, but the gluten elimination is 100% accurate. Welcome!

covebeach Newbie
covebeach
Posted

My son's pediatrician ran the blood test, which came back negative. The pediatrician said he was fine. But because my son was still having symptoms, we eliminated all gluten. His symptoms instantly disappeared. Then he saw an endocrinologist, who diagnosed him with celiac (he also had a Vitamin D deficiency) She said the Ig test can give a false negative for celiac if the individual's Ig production is low.

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    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

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    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

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    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
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