Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

2 1/2 Months Gluten Free


ImWithStupid

Recommended Posts

ImWithStupid Newbie

Previous thread if you want to view my story and list of symptoms-

Hello everyone, just stopping by to give a status update on my symptoms. I had been gluten free for almost 2 months then I thought I'd try gluten for a week to solidify my self diagnosis of Celiac. 5 days in I went back to gluten free, my upper abdomen hurt more and more every meal that I had bread with. Also severe fatigue was setting in and the muscle twitching came back, my whole bicep would just sit there bouncing involuntarily. It has been 3+ weeks since I started the gluten free diet again and my muscle twitches are almost gone completely(my calf or shoulder might twitch every once in awhile). I started exercising again with light weights and cardio until I felt comfortable enough to try a vigorous workout. Before my self diagnosis when I would try to workout I would almost faint and afterwards my body would shake uncontrollably and it would take almost a week before I could even attempt to exercise again. Also I have cut my blood pressure medication down to once per day in the morning(I have low blood pressure) because my blood pressure is somewhat normal in the evening now. My GI symptoms have also improved, I haven't had constipation or other GI ailments since going gluten free. The main neurological symptoms that I have noticed clearing up is the brain fog and my difficulty finding words while talking.

Again my diagnosis is only a self diagnosis, so I would like any opinions regarding the clearing up of symptoms and if this is typical of recovery from a gluten free diet. I also might request my medical records if anyone wanted to interpret the tests I've had done. The one thing I remember from my last round of tests was my cholesterol levels. My LDL and HDL totaled 62, which is apparently another sign of celiac due to lack of fat absorption from the damaged small intestine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Sounds like you are healing up and your challenge did show how much your body doesn't want gluten. Keep up with the diet and hope you are feeling great soon. It can take awhile for the body to recover so do be patient and strict with the diet. It might be a good idea to have vitamin and mineral levels done to see if there is anything you need to supplement.

quincy Contributor

Previous thread if you want to view my story and list of symptoms-

Hello everyone, just stopping by to give a status update on my symptoms. I had been gluten free for almost 2 months then I thought I'd try gluten for a week to solidify my self diagnosis of Celiac. 5 days in I went back to gluten free, my upper abdomen hurt more and more every meal that I had bread with. Also severe fatigue was setting in and the muscle twitching came back, my whole bicep would just sit there bouncing involuntarily. It has been 3+ weeks since I started the gluten free diet again and my muscle twitches are almost gone completely(my calf or shoulder might twitch every once in awhile). I started exercising again with light weights and cardio until I felt comfortable enough to try a vigorous workout. Before my self diagnosis when I would try to workout I would almost faint and afterwards my body would shake uncontrollably and it would take almost a week before I could even attempt to exercise again. Also I have cut my blood pressure medication down to once per day in the morning(I have low blood pressure) because my blood pressure is somewhat normal in the evening now. My GI symptoms have also improved, I haven't had constipation or other GI ailments since going gluten free. The main neurological symptoms that I have noticed clearing up is the brain fog and my difficulty finding words while talking.

Again my diagnosis is only a self diagnosis, so I would like any opinions regarding the clearing up of symptoms and if this is typical of recovery from a gluten free diet. I also might request my medical records if anyone wanted to interpret the tests I've had done. The one thing I remember from my last round of tests was my cholesterol levels. My LDL and HDL totaled 62, which is apparently another sign of celiac due to lack of fat absorption from the damaged small intestine.

It can't hurt to get a confirmation by blood test to see where your antibody levels are. all your symptoms sound familiar. I just found out a year ago and learned that I was pre-osteoperosis due to lack of vit d and calcium. having your vitamin levels checkd through blood test is a good idea too. it gives you a baseline of what supplements you should be taking. heal well!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      5

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      5

      Anyone else get a lot of upper respiratory infections?

    3. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      5

      Anyone else get a lot of upper respiratory infections?

    4. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      5

      Anyone else get a lot of upper respiratory infections?

    5. - Scott Adams replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      5

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442

    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
    • Scott Adams
      Yes, some people with celiac disease do seem to deal with frequent infections, especially if they have ongoing inflammation, nutrient deficiencies, asthma/allergies, or another immune issue going on. Low vitamin D can also affect immune function, so it would be reasonable to ask your doctor to recheck vitamin D, iron/ferritin, B12, folate, zinc, and possibly general immune markers if this keeps happening. Also, people with celiac disease can have reduced spleen function, or hyposplenism, which is one reason some celiac organizations recommend pneumococcal vaccination or making sure you are up to date on pneumonia-related vaccines. Since you are getting bronchitis, pneumonia, and frequent colds in your late 20s, I would not just brush it off, especially if symptoms are lingering after a week and a half. It may or may not be directly from celiac, but repeated respiratory infections are worth documenting and discussing with your doctor, and possibly with an allergist/immunologist or pulmonologist.
×
×
  • Create New...