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Genetic Research on Celiac Disease Promises Hope for Celiacs - Celiac.com

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Genetic Research on Celiac Disease Promises Hope for Celiacs


GlutenFreeHelp.info became extremely interested and involved in the subjects of celiac disease, gluten sensitivity and gluten issues a number of years ago, after being diagnosed as celiac after many years of unresolved troubles. ...

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Another example, alas, of mushy "wishful thinking" on the topic.

"Substantial" evidence has been found by British researchers that the genes which are connected with celiac disease are also linked to other autoimmune disease such as rheumatoid arthritis. Thus scientists are able to understand how the genetic risk factors for the disease operate by changing the number of immune system genes that cells make. Additionally, it's now understood that there are "hundreds" of genetic risk factors, which means that scientists should be able to "have a good guess at nearly half of the genetic risk at present," van Heel wrote in the Nature Genetics journal, which published his study.

How come only 3% of celiac Americans have been properly diagnosed? Chances are, they or their doctors haven't even heard of the disease. Research on celiac disease in the U.S. depends completely on the generosity of benefactors for its funding. There would be no way to continue this research and the efforts to raise awareness without these charitable donations. Out of the estimated fifty autoimmune diseases that have been discovered by doctors, celiac disease is the only one for which research isn't supported by the U.S. government.

After years of running around in circles with clueless doctors in a quest to find the cause of my painful symptoms, I finally researched my symptoms on my own. Luckily, as a result of my own findings, I've been properly diagnosed, but managing the gluten-free diet is still a challenge. A pill that could offset genetic factors is appealing to many celiacs like myself. Although the treatment for celiac disease is simple, it calls for a lot of work and can be disheartening at times, requiring a total lifestyle change and a lot of time on home-cooking.

What's the difference between the U.S. and the United Kingdom ?

Universal health care coverage.

What happens when celiacs are actually diagnosed ?

Fewer sick people.

What sort of business was working against that concept of implementing universal health coverage in 2009, during the debate on the health care legislation ?

The pharmaceutical industries. (Private insurance industries, also.)

Who sets the current diagnostic criteria to be diagnosed with a disease, in the United States ? In other words, who is it that your doctor's office must get permission from, and follow the guidelines of, to run tests and diagnostic procedures ? If you are under retirement age, and not on Medicare ?

Hint. It begins with "i." Your American doctor has clerks that do nothing but specialize in coding these requests and wrangling with the insurance industry for permission and reimbursements.

What industry is currently not required to report on its retail product labeling whether or not the item to be ingested or applied or injected contains gluten ?

Guess. It begins with a "ph."

What country still doesn't have FDA labeling standards on gluten?

( Well, duh. You said FDA, so you must mean the U.S. ;) )

And why is this being done this way ? Because currently the U.S. political philosophy is to have profit as the goal of the medical industry. As long as the insurance industry can make a tidy profit by rejecting one out of six and overcharging the rest, nothing changes.

Now, the question is, the other modern medications the pharmaceutical industry has come up with during the past decade or so, to treat auto immune diseases, are extraordinarily expensive.

Do you really want to get on that treadmill ?

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