Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Could I Have Celiac's

coryjmclaughlin

Recommended Posts

coryjmclaughlin Newbie
coryjmclaughlin
Posted

I am a 35 year old mother of 2 children who has Lupus and has never really had any stomach problems aside from constipation until about 8 weeks ago. Beginning about 8 weeks, I basically woke up and started having diahrea and severe bloating on a daily basis. Each morning I have about 2-3 bouts of diahrea and as soon as I put anything in my mouth I get bloated and full and I spend the rest of the day like that. I had stool studies done and everything turned up fine. They tried Nexium and Librax and so far neither have really helped. I just saw a GI doctor last week and he called today and said that my IgA blood test was low but wants to do another blood test before confirm celiac's. Do my symptom's sound like they could be Celiac's? I usually only have the diahrea in the morning but every so often it does happen in the afternoon or evening. Any thoughts?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

Welcome to the forum! Yes, it's entirely possible you may have celiac. Did your dr. run the complete celiac panel of blood tests? The big D was my main symptom.

coryjmclaughlin Newbie
coryjmclaughlin
Posted
  • Author

Welcome to the forum! Yes, it's entirely possible you may have celiac. Did your dr. run the complete celiac panel of blood tests? The big D was my main symptom.

to be honest, I have no idea what he ran...He just said that my IgA came back low and wanted to run some more to confirm Celiac's and was going to send the prescription out to me ASAP.

2johndeereboys Explorer
2johndeereboys
Posted

Hi!

You sound a lot like me!!!! I have had chronic diarrhea for at least 9 months now and as soon as I eat something it is not 10 or 15 min and I am running to the bathroom!! And I bloat so bad that I look 6 or 7 months PG!! :o

I had a Celiac panel drawn up on the 11th and am trying to wait patiently waiting for the results. I have read tho to keep eating as usual because if they have to do a biopsy you could get a false negative!

Just wanted to let you know that you are not alone!!

HAve a great evening!!!

Lisa

:D

coryjmclaughlin Newbie
coryjmclaughlin
Posted
  • Author

Hi!

You sound a lot like me!!!! I have had chronic diarrhea for at least 9 months now and as soon as I eat something it is not 10 or 15 min and I am running to the bathroom!! And I bloat so bad that I look 6 or 7 months PG!! :o

I had a Celiac panel drawn up on the 11th and am trying to wait patiently waiting for the results. I have read tho to keep eating as usual because if they have to do a biopsy you could get a false negative!

Just wanted to let you know that you are not alone!!

HAve a great evening!!!

Lisa

:D

Lisa,

I hope you get your results soon and that you get some relief.

They gave me an anti-spasmadic medicine to see if that helps my stomach and it is doing absolutely nothing for me. I've also started getting cramping in my stomach every so often which I didn't have before. I'm going to try and go tomorrow and get the bloodwork that my doctor wants done tomorrow.

coryjmclaughlin Newbie
coryjmclaughlin
Posted
  • Author

Any other thoughts as to what this could be besides Celiac's?

mushroom Proficient
mushroom
Posted

Any other thoughts as to what this could be besides Celiac's?

Well, if not celiac it could be non-celiac gluten intolerance :D but of course our orientation is to think in terms of gluten first, other things later.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


coryjmclaughlin Newbie
coryjmclaughlin
Posted
  • Author

Well, if not celiac it could be non-celiac gluten intolerance :D but of course our orientation is to think in terms of gluten first, other things later.

Well, my bloodwork came back negative so I guess it isn't Celiacs but the medication for the IBS is not working so now I have to have colonscopy. For now, the gi doctor just wants me to take Imodium every 4-6hrs to stop the diahrea until I go for the colonscopy next week.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Well, my bloodwork came back negative so I guess it isn't Celiacs but the medication for the IBS is not working so now I have to have colonscopy. For now, the gi doctor just wants me to take Imodium every 4-6hrs to stop the diahrea until I go for the colonscopy next week.

As long as you are having a colonoscopy anyway, you could ask them to do an endoscopy with biopies to test for villi damage. A colonoscopy will not test for celiac, so you would need the endoscopy with multiple biopies. A coloscopy will not test for celaic. Many people do have both of these procedures scheduled at the same time for convienence and to be thorough however.

mushroom Proficient
mushroom
Posted

I agree with GlutenFreeManna - if you are having a colonoscopy, get the endo at the same time. Most of the cost of the procedure is in the facilities, nurses, etc., and very little of it the extra time for the doctor. And a colonoscopy will tell you if you have Crohn's disease, maybe, but it will tell you nothing about celiac disease. The blood tests can be wrong, heck even the endoscopy biopsy can be false negatives, but at least you will have tried your best to get a diagnosis. In the end, we often just have to stop eating gluten without a diagnosis and hope that it works (and 90% of the time I would estimate that it does, although you may discover another intolerance or two along the way.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
    2. Joseph01
      - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

      This is way past due for your post. I have Celiac and have been recovering for more than a year. Doing well. Used Essential oil to day to fry some chicken. Read the label all good. Then ate some chicken. Here comes the gluten reaction. I haven't had a gluten reaction since year. I am angry. I have been so careful with this crap and don't wan't any...
    3. ThomasA55
      - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I...
    5. knitty kitty
      - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

      Do keep in mind that many of the newly diagnosed have lactose intolerance. This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse. When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      We Keep Getting Glutened With Vegetable Oil

      By Joseph01 · Posted

      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...