Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Test Results


shezatrip

Recommended Posts

shezatrip Apprentice

Hi everyone,

I was wondering if some of you can help answer a test question.

My son took the test (has reoccuring ulcers in mouth, low D, Low Iron, muscle pain,e tc...)

His test came out a: 3 The test said anything over a 8 is a positive.

Could he be celiac positive with a 3? or even sensitive? We hadn't been loading up on gluten at all prior

to the test.

Advice please.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

Was this a blood test? It appears to be normal, but there is a 20% error rate for blood tests (I actually think my sister had a false negative - I'm so sure she has some sort of intolerance). And I've heard that some people have a gluten intolerance (that isn't Celiac) that doesn't show up in test results.

If you think it could still be Celiac or an intolerance you can try putting him on the diet and see if he feels better. A lot of people on this board have done it and find that their symptoms disappeared. Self-diagnosis and feeling awesome is better than not doing anything and feeling horrible.

Hope everything works out!

Link to comment
Share on other sites
mushroom Proficient

Whatever test it was, if the range is over 8 positive, and he tested a 3, he failed the test :D I guess it was one of the celiac tests so that means that he does not test positive for celiac. That does not, however, mean he has no problem with gluten. It just means that the problem is not celiac disease, as is defined by the blood tests and specific biopsy test. He can still be non-celiac gluten intolerant. Loading on gluten would not make any difference to his test result; eating gluten light could.. The recommended gluten consumption is the equivalent of three to four slices of bread a day for an adult. I am not sure how much a child of unspecified age would have to eat.

Link to comment
Share on other sites
shezatrip Apprentice

Thanks for your answers everyone. All of this is a nightmare to find out.

The elimination diet stinks. It's so hard to know what is what and takes forever.

I am going to get an allergy food test panel/and tree's, pollen, etc..panel.

I AM tired of Dr's!!! ACK

Link to comment
Share on other sites
WinterSong Community Regular

Thanks for your answers everyone. All of this is a nightmare to find out.

The elimination diet stinks. It's so hard to know what is what and takes forever.

I am going to get an allergy food test panel/and tree's, pollen, etc..panel.

I AM tired of Dr's!!! ACK

I know how you feel. I got massively sick for most of February and March. I went to three different doctors before getting my diagnosis (and I was the one who said "I think it could be Celiac. I want to get tested for that"). Then I had to get my endoscopy done twice because it didn't work the first time. It was really stressful. Just keep looking forward to the future when you find out what it is and things get easier.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...