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Oesophageal Cancer Is It Related To Celiacs


Meg123

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Meg123 Explorer

I'm in the process of waiting for my biopsy after a low positive on the, bloods and admit I'm fixating a bit.

Because I tested negative on the gene test, I'm just having trouble with the likelyhood that I really do have it at this stage (even though I am symptomatic), so need to see what the biopsy shows.

Chatting with my Mum today I mentioned how horrendous my reflux / heartburn is on this challenge, and she was talking about how she has had it since her early forties (she's now 59) and is medicated for it. Mum always thought it was to do with a dodgy valve emptying into her stomach, as food comes up when she lies down sometimes....

Her father died of Oesophageal Cancer and had indigestion / heartburn as long as she could remember. He was diagnosed with duodenal ulcers. But it was in the 1930s....

I was thinking maybe it could have been celiac disease. Just wondering if it is a typical end stage of celiac disease? Thanks

On the other side of my family (dad's side), my nana had stomach ulcers etc, suffered with nervousness and anxiety, and was bone thin her whole life. Two of her children had thyroid conditions with a goiter etc. This also sounds potentially celiac related too doesn't it...


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txplowgirl Enthusiast

Hi Meg, I wouldn't be surprised. I had an aunt (my mother's sister)pass away last year due to esophageal cancer. Cancer runs really bad on both sides of my family. My mother has had GERD and the big D most of her life as well as a host of other problems. She was 1 of 9 and she lost her sister and 4 brothers to cancer. Colon and stomach cancer. Her father to stomach cancer, and 3 of his sisters to colon, lung and pancreatic cancer. Several cousins ranging from breast cancer, colon cancer and so on.

I lost my father in 03 to colon cancer, he was 1 of 11, out of those 11, he lost 2 brothers to colon and stomach cancer, I had a cousin from that side who passed away at the age of 31 to brain stem cancer, he was diagnosed at 28. I have 2 cousins who are brothers. 1 has kidney cancer, he is in remeission at the moment, thank god, and his brother is going through chemo right now for pancreatic cancer. One of their nephews is battling liver cancer at the age of 32 right now, and have lost 1 cousin to breast cancer and have 2 more battling breast cancer.

My grandmother passed away from ovarian cancer and her sister from lung cancer.

all of them had GERD and reflux as well as thyroid and just about every other Celiac symptom you can speak of.

I have a cousin that I managed to talk into going gluten free and her reflux symptoms have gone away as well as her seizures have eased up a lot. She used to have seizures at least once to 3 times a day for the last 40 years and that's with medication, She's been gluten free a year now and her seizures have gone to about 1 a week unless she gets glutened.

This is why I stay gluten free.

ravenwoodglass Mentor

I'm in the process of waiting for my biopsy after a low positive on the, bloods and admit I'm fixating a bit.

Because I tested negative on the gene test, I'm just having trouble with the likelyhood that I really do have it at this stage (even though I am symptomatic), so need to see what the biopsy shows.

Chatting with my Mum today I mentioned how horrendous my reflux / heartburn is on this challenge,

If they only tested you for DQ2 and DQ8 then they only tested for two of the up to 27 celiac associated genes. Yes you could still have celiac.

False negatives on both blood and biopsy are fairly common but false positives are virtually unheard of. If you have had a positive blood test and you have reacted badly to the gluten challenge you need to be gluten free and you don't need to wait on the results of the biopsy.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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