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Ataxia- Balance Disturbance


AVR1962

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AVR1962 Collaborator

My off balance issue and little hair-like feelings trailing on my skin are the last of my symptoms to remain after going on a gluten-free diet. Has anyone had any success in getting balance back by using any supplements? Or does it just take awhile being gluten-free to get balance back. I have tried genger tabs and they are doing nothing. I read this is a result of nerve damage. Is there a way to repair the nerves other than time?


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rosetapper23 Explorer

You might take a look at this website, which lists the symptoms of nutritional deficiencies. I see that manganese deficiency can cause ataxia. Here's the link:

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cahill Collaborator

My off balance issue and little hair-like feelings trailing on my skin are the last of my symptoms to remain after going on a gluten-free diet. Has anyone had any success in getting balance back by using any supplements? Or does it just take awhile being gluten-free to get balance back. I have tried genger tabs and they are doing nothing. I read this is a result of nerve damage. Is there a way to repair the nerves other than time?

Gluten free ,Soy free and time did it for me. The healing was slow but steady.

ravenwoodglass Mentor

Along with being very strict with the diet I found sublingual B12 seemed to be helpful. A referral to a physical therapist can also be helpful in retraining your brain and body to improve your balance. It does sometimes take a long time to heal so hang in there.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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