Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Too Old For A Diagnosis?


Finally-45

Recommended Posts

ironcross Newbie

AMEN AS A FATHER OF TWO AND A FITNESS THERAPIST, AND PERSONAL TRAINER, I WAS FRUSTERATED ON THE LENGTH OF TIME IT TOOK THEM TO FIGURE OUT I HAD CELIAC DISEASE. IF INTERESTED WOULD LOVE TO TYPE CHAT MORE. GOD BLESS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cougie23 Explorer

You know the funny/sad thing is how long we go without knowing! Looking back with the knowlage I have now...I've had symtoms since the age of 6 at least....(elementry school age children should not be passing out for no reason, or having debilitating migraines for no reason...blood tests and cat scans allways came up negitive...maybe a simple allergy test would have been nice!!!)

My point is that this goes unchecked for so long and its not till we're older (in my case 47) that we fially find out whats REALY wrong!!!After the nerve dammage and malnoutrishion...I thought it was MS for the longest time....I only had like 95 out of 100 symptoms... :blink::angry: !!! It's just ashame that none of these "profesionals" had the sense to even be suspicious or make the sugestion!

well now the world is getting wiser about this epidemic...and its begining to bwe a house hold name...maybe someday kids will be tested routinely just as they get their imunity shots...It could happen! :rolleyes::D

Just thought I'd throw in my 2cents !! B)

cougie23 Explorer

AMEN AS A FATHER OF TWO AND A FITNESS THERAPIST, AND PERSONAL TRAINER, I WAS FRUSTERATED ON THE LENGTH OF TIME IT TOOK THEM TO FIGURE OUT I HAD CELIAC DISEASE. IF INTERESTED WOULD LOVE TO TYPE CHAT MORE. GOD BLESS!

Hi Ironcross...welcome to the community!!! :D

How long ago did you find out?Have you started gluten free yet? It will take awhile for everything to get out of your system..some days even the good stuff will upset you..you have an advantage being a fittness theripist though...you must allready be eating pretty healthy! just watch for those hidden glutens! theres some good info on the Celiac.com site(as well as this forum) but scott has a list of words to look for that are hidden gluten in ingrediants and what to look for!It's very helpful...google all products you use in your house for gluten...(toothpaste, shampoo, deoderent, your brand of instant coffee...)!! Ya I know...I was shocked too ..but gluten is used as a filler and emulsifier...it's in EVERYTHING!!! :blink::ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...