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Questions?

Unclear Test Results

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Test results: Deaminated Gliadin Abs, Iga 138(ABN:H)

t-Transglutaminase(tTG)IgG 6(ABN:H)

These were the only Abnormal results! The Biopsy was neg.

Dr now has me on a month of gluten-free Diet. I have asked if it would be wise to do the Genetic Testing and he has said No! I have been told in the past that I have some sort of Auto Immune problem. I had 9 miscarriges. I have had a Neice diagnosed as a child with Celiacs. A father with bowel issues and A brother also with issues and never diagnosed. Both not living at this time. I have had lots of bowel issues that I thought was IBS. I also have problems with Reflux. I have always thought I was Lactose Intolerant. Does this sound like Celiac Disease? What should I request as far as test now?

I would appreciate any insite at all! Thanks! Concerned for my Children and Grandchildren!

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Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.

Thank you for your reply! So you feel certain on those blood test! I have not yet seen the Dr. I have seen his PA and have a dear friend who works with this Dr. I see him the 23rd. I just needed someone to say yes this is the disease and not just sensitivities! I am just like you said uncertain and uncomfortable about it all. Thank you again and I love this site for help.

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You have what's sometimes called "latent celiac" meaning you are in the period when you have antibodies but the intestinal damage hasn't accumulated to where it shows up on biopsy. If you keep eating wheat, it's only a matter of time until your intestines are a mess!

Go onto the diet like your doctor suggests, and please hang around and ask questions. It's a big change and we're happy to help you through it.

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Yes, I agree with ravenwoodglass, with those results, your symptoms, your family history, the 9 miscarriages, I would consider that you most definitely need to be on the gluten free diet. While it is a bit overwhelming at first, once you get the hang of it it is not nearly as difficult as some people make it out to be. Inconvenient, yes, but difficult? No, I don't think so. Stay in there and you will soon get the hang of it. :)


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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