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Need Some Advice ;(

Melanie:)

By Melanie:)
in Coping with Celiac Disease

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Melanie:) Newbie
Melanie:)
Posted

Over the last 4 months I have had problems with itchy legs, I know that sounds like a minor problem, but it has been very bad. Especially at night. I went to the doctor back in the spring, and told him I wasn't feeling well and my legs itched so bad it was driving me crazy. There isn't anything wrong with my skin, no rash, bumps or dryness. He told me it was just probably something I was washing with. He took blood and found that I had an iron deficiency and a vitamin D deficiency. and give me prescriptions for those. over the summer my itching is still there and I don't feel any better. In researching I have found that my symptoms seem to have a connection. I was diagnosed with osteopenia 10 years ago. In the reading I have done, thought that I may have Celiac Disease, and have went off Gluten for a week and a half. my itching hasn't gotten better. But just realized that my shampoo has wheat protein in it. So I am changing that today. My question is should I continue with my self diagnosis and see if my itching goes away? or go back to eating gluten and see the doctor? I feel very overwhelmed and confused. I have researched and read and have come to the point I don't know what to do. I would love to hear from those of you who have been threw this...Thank you so much, I think this forum is a God sent.

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ravenwoodglass Mentor
ravenwoodglass
Posted

It would be a good idea IMHO to go back on gluten and get tested. After celiac testing is done then give the diet a strict try.

Gfreeatx Apprentice
Gfreeatx
Posted

Oh, I feel for you. :( I had the same terrible itchy rash on my shins before I was diagnosed and it made me miserable. It did take a good couple of months for me to see complete improvement, but thankfully I haven't had a reoccurance since then. Hope you get some answers and relief soon!

Melanie:) Newbie
Melanie:)
Posted
  • Author

Oh, I feel for you. :( I had the same terrible itchy rash on my shins before I was diagnosed and it made me miserable. It did take a good couple of months for me to see complete improvement, but thankfully I haven't had a reoccurance since then. Hope you get some answers and relief soon!

Thank you so much, it does make me feel better to talk to those that can relate!

Melanie:) Newbie
Melanie:)
Posted
  • Author

It would be a good idea IMHO to go back on gluten and get tested. After celiac testing is done then give the diet a strict try.

Ok I think I am going to do that how long do you think I should go back on gluten before I see the doctor? Thank you so much for your help.

Skylark Collaborator
Skylark
Posted

Ok I think I am going to do that how long do you think I should go back on gluten before I see the doctor? Thank you so much for your help.

As long as you go right back on gluten a week and a half shouldn't mess up the celiac tests. Good luck! I had an itchy rash on my hand so I know how annoying it can be.

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    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

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    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
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      Anyone else get a lot of upper respiratory infections?

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      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
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      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
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