Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh Only Occur In Larger Patches?

heather Goble

By heather Goble
in Dermatitis Herpetiformis

Recommended Posts

heather Goble Rookie
heather Goble
Posted

Since I have been gluten free (about 8 months) I notice when I Get cc'd I sometimes get an itchy blister. It lasts for a few days, goes down, sometimes goes away, sometimes repeats this cycle. When it finally goes away, it leaves a purple mark. The odd thing is, I only get one or two at a time so it doesn't really seem like a rash, but what is it then?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

DH can look very different person to person. You don't have to have a big rashy patch.

Some people also get eczema/psoriasis from gluten.

I was on the fence about mine til I withdrew iodine - and it quickly went away and hasn't come back. That's a pretty strong indicator.

rosetapper23 Explorer
rosetapper23
Posted

When I get glutened, I usually get only one blister on the sole of my right foot and another blister on my left palm. I know they're DH because I used to get them all over my face and neck; however, for some reason, I only get one blister in each of those spots when I've been glutened, and sometimes I'll get one or two on my face or neck, too. And, yes, they leave a purple or dark scar that lasts for quite a while.

heather Goble Rookie
heather Goble
Posted
  • Author

It seems strange that I didn't start getting this until after I stopped eating gluten. I once did get a patch on my chest, the very first time it happened. The patch on my chest was extremely itchy, but hurt when I scratched it. I had eaten peanuts from trader joes that were labeled gluten free. However, the back of the package said that they were made on shared equipment with wheat. For the most part I usually get one on my hand/wrist and on in the same spot every time on the top of my foot.

rosetapper23 Explorer
rosetapper23
Posted

Yes, until I went gluten free, the only places I got DH were my face and neck; however, AFTER going gluten free, whenever I got glutened, usually only my hand and foot ended up with a DH blister or two. Bizarre mystery, for sure--but, hey, there are TWO of us who suffer from it...and I'll bet there are more.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, until I went gluten free, the only places I got DH were my face and neck; however, AFTER going gluten free, whenever I got glutened, usually only my hand and foot ended up with a DH blister or two. Bizarre mystery, for sure--but, hey, there are TWO of us who suffer from it...and I'll bet there are more.

Yep there are. It can also change in presentation in myself for example early on a DH outbreak was the first sign I had been glutened but after I had been well healed it became the last to appear. Now that I have been gluten-free for 9 years I have to get glutened really bad for it to show up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,550
    • Most Online (within 30 mins)
      7,748
    Mantooth
    Newest Member
    Mantooth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mantooth
      Anyone Else Experiencing These Symptoms?

      By Mantooth · Posted

      Thanks for the kind words. It's hard to convince my doctor to investigate further because of a negative blood test and he only tested me for one marker. 🙃 I've come to the point where I need to take this into my own hands because the doctors are infuriating and it's not going anywhere. I've been gluten free for a week and feeling better but I was still consuming dairy and I think that's what's backing me up. Next week no dairy introduced. 
    • nanny marley
      Anyone Else Experiencing These Symptoms?

      By nanny marley · Posted

      Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊
    • nanny marley
      New here help needed

      By nanny marley · Posted

      I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help  gives me faith I'm on the right track 
    • nanny marley
      New here help needed

      By nanny marley · Posted

      Yes I have the fish symbol on my car and my ring 🙏 and yes I've been going for years to the docters but I got that feed up ov having to avoid eating out or even visiting people threw aniexty of needing the toilet or of gas or sickness I did some research of my own and I did the elimination diet and what a difference I've had my family think I'm nuts at times saying it's in my head it won't help until they now are doing it too because my daughter's are facing the same issues it's made me feel so ill at times it's so crazy how food can do this to you one night I was up 6 times to the point I had nothing left in my body I didn't go to the toilet for days after and I felt sick has a dog I'm so glad I found this forum I feel a little more human already 😄
    • trents
      How to keep water down?

      By trents · Posted

      Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
×
×
  • Create New...